This week on the Major Pain podcast, our host Jesse is interviewed for a change! This interview is taken from a recent rheumatoid arthritis summit hosted by Andrea Dunn. She asks Jesse what inspired him to create the Major Pain podcast, inquires about his health journey and recent diagnosis of mast cell activation syndrome (MCAS) and small fiber neuropathy (SFN), and asks what he would recommend for anyone searching to diagnose a mystery illness.
After fighting for a diagnosis for over a decade, Jesse has a lot of experience dealing with the medical system. He shares many tips for others seeking their own diagnosis, including applying for disability right away and seeking care at a teaching hospital to be closer to the latest medical research. He also discusses the importance of having mental health support throughout the diagnostic journey, and how his relationship with his partner Andi was challenged by his illness.
This interview was conducted by Andrea Dunn during her recent RA Summit. Find her online at https://www.rawyldchyld.com/
PODCAST LINKS
WEBSITE: https://majorpainpodcast.com
EMAIL: majorpainpodcast@gmail.com
PATREON: https://www.patreon.com/majorpainpodcast
SUBSCRIBE: https://majorpainpodcast.com/subscribe
SPOTIFY: https://open.spotify.com/show/5NDoD07WJmICdfdRKq0TyN
APPLE PODCASTS: https://podcasts.apple.com/us/podcast/major-pain/id1562947550?mt=2&ls=1
SOCIAL MEDIA
INSTAGRAM: https://www.instagram.com/majorpainpodcast
TIKTOK: https://www.tiktok.com/@majorpainpodcast
YOUTUBE: https://www.youtube.com/@MajorPainPodcast
FACEBOOK: https://www.facebook.com/majorpainpodcast
AFFILIATE LINKS
RARE PATIENT VOICE: https://rarepatientvoice.com/MajorPainPodcast
AMAZON SHOP: https://www.amazon.com/shop/majorpainpodcast
NEURAHEALTH: https://www.neurahealth.co/majorpain
Podcast: Play in new window | Download
Subscribe: Apple Podcasts | Spotify | Amazon Music | Email | RSS | More
3 Comments
Morgan · February 21, 2024 at 6:22 pm
A wonderful listen
Laura James · February 23, 2024 at 7:45 pm
I’m so sorry you’re dealing with so much and hope you not only find answers but relief.
I’ve been fighting for 23 years now. Due to organizations that shouldn’t be dictating how your physician treats you has caused tremendous tragedies!!! I lost my job, marriage, it’s hard to hang out with my 6 kids. So when I say I totally understand I TOTALLY understand. I wish the best for you.
Major Pain Podcast · February 23, 2024 at 7:47 pm
Thank you so much for the kind words, Laura! It sounds like you’ve got quite the story to share, if you ever want to come on the podcast email me at majorpainpodcast@gmail.com