Chronic Illness Author and Advocate Ilana Jacqueline Shares Her Rare Disease Journey

As a chronically ill child, Ilana was repeatedly accused of faking her illness when seeking medical care. Doctors refused to dig deeper into why this particular child was consistently afflicted with bacterial infections and viruses that took abnormally long to heal, choosing instead to blame the parents or Ilana herself. Read more…

Living with Rheumatoid Arthritis

Between sophomore and junior year of college, Cheryl’s world turned upside down as she began to feel mysteriously unwell. She started losing weight at a frightening rate, getting down to 105 pounds. Her doctors refused to believe that she was ill, going so far as to call Cheryl’s parents and Read more…

Fighting Medical Gaslighting while Living with Chronic Illness

Aimée has been experiencing chronic pain and increasingly debilitating neurological symptoms throughout her life. She was first diagnosed with fibromyalgia at just 12 years old, at a time when that diagnosis carried little to no actionable recourse and significant stigma. Due to a lack of helpful doctors in the face Read more…

Late Stage Lyme Disease: Diagnosed 20 Years Later

At 11 years old, it was common for Emily to play in the grassy field of the buffalo farm where she grew up. One day she was bitten by a tick, developing a bullseye rash around the bite. Within weeks she developed a severe fever and hallucinations, but unfortunately the Read more…

Living with Multiple Sclerosis: Diagnosed at 19, Thriving at 34

15 years after her multiple sclerosis diagnosis, Lauren has learned to live comfortably and happily with her disease. She now conceives of MS as a friendly neighbor, something that pops by and says hello from time to time without weighing upon her daily life. Reflecting back on her diagnosis at Read more…

Rolling with a Mystery Disability

Like millions of other Americans, Mya suffers from a disabling undiagnosed disease. She experiences constant pain, brain fog, and requires a wheelchair to be mobile. But she is also a viral TikTok sensation, known for her joyous attitude, dance moves and social activism on behalf of the disabled community. In Read more…