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Tayler’s EDS was Screaming for Attention, But Doctors Ignored It

Looking back through the history of her medical challenges, it becomes painfully obvious that Tayler was born with the connective tissue disease EDS (Ehlers-Danlos Syndrome). Unfortunately, the lack of quality healthcare in her youth prevented this diagnosis for many years. She struggled physically throughout childhood, often being accused of laziness Read more…

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By Major Pain Podcast, ago

Before Helping Others With CFS Recovery, Miguel Battled For His Health

After recovering from CFS (chronic fatigue syndrome aka myalgic encephalomyelitis) Miguel Bautista felt like he had a new lease on life. At the height of his illness he was unable to walk or sit up in bed and needed meals blended so he could drink them. Now he is running Read more…

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By Major Pain Podcast, ago

Amee is Finally Opening Up About Epilepsy 35 Years After Being Diagnosed

When Amee was first diagnosed with epilepsy at 8 years old, one simple medication was able to control her disease. This made it easy to hide her illness from almost everyone in her life, which remained the case for about 35 years. Of course there were complications along the way. Read more…

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By Major Pain Podcast, ago

Being Crushed by a Tree Changed Steve Lovelace’s Life Forever

In 1982 Steve Lovelace was pinned by a felled tree that barber chaired, meaning it split lengthwise while being cut down. His injuries were severe – his face and several vertebrae were crushed. Steve found himself instantly paralyzed and stuck under this tree, where he would remain for hours while Read more…

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By Major Pain Podcast, ago

Announcing the Undiagnosed Disease Fund!

Andi and Jesse are married! For their wedding registry they asked their community to donate to an Undiagnosed Disease Fund, with the goal of raising enough money to provide genetic testing for an individual in need. Full genome sequencing can be helpful for individuals with a mystery illness, either to Read more…

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By Major Pain Podcast, ago

Defying the Odds: Danielle’s Journey with Cerebral Palsy

Danielle was born a micro preemie at just 25 weeks, weighing only 1 pound 8 ounces. Diagnosed with cerebral palsy, doctors gave her a .5% chance of living a meaningful life. Alongside cerebral palsy, she also lives with POTS and scoliosis, but this has not stopped her from owning a Read more…

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By Major Pain Podcast, ago

Jen From My Spoonie Sisters On How RA Led to Medically Induced Pustular Psoriasis

Jennifer Weaver is the host of the My Spoonie Sisters podcast, and her history with chronic illness is a storied tale. While most people never have to worry about the 1% chance of side effects from medication, Jen is the person who will develop the rare reaction. That’s exactly how Read more…

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By Major Pain Podcast, ago

Fighting Back Against CFS/ME With Dr. Hoppers

Dr. Melanie Hoppers never planned to become an expert on chronic fatigue syndrome (CFS). She learned about it briefly in medical school, but her professors largely brushed off the complaints of CFS patients. It wasn’t until her own daughter got sick that Dr. Hoppers began to research CFS, becoming desperate Read more…

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By Major Pain Podcast, ago

From Lupus to Fibromyalgia: Kindra’s Evolving Diagnosis

For Kindra, it’s been a 17 year journey to figure out why she is chronically ill. Her symptoms started around 14 years old, and include not just widespread chronic pain, but also severe fatigue and brain fog. Although the pain is difficult, the fatigue has the most detrimental effect on Read more…

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By Major Pain Podcast, ago

Are Scoliosis, Kyphosis and EDS Connected? Billie’s Twisty Tale

In 5th grade Billie’s classmates were all evaluated for scoliosis, and she was the one person in her entire class who had it. Scoliosis is a condition in which a person’s spine has an irregular curve, and as Billie got older this condition got worse and worse. Her spine was Read more…

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By Major Pain Podcast, ago