health

Rasheera Dopson on Being Born Almost 5 Months Premature, Causing VATER and Goldenhar Syndromes

Rasheera Dopson, host of the Womanhood & Disability podcast, is an accomplished author, public speaker and advocate spreading her messages of justice, disability empowerment and awareness. She came by this work through her own experience living with two rare syndromes, both caused by her being born about 5 months premature. Read more…

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By Major Pain Podcast, ago
A photo of the three podcast guests who return to update us on their stories in the season 4 premiere.

Season 4 Premiere! Catching Up With Michelle, Bek and Simon

We’re kicking off the fourth season of Major Pain by catching up with previous guests! Michelle and Bek both have new diagnoses that are recontextualizing their journeys, while Simon is feeling completely cured. As Major Pain enters its fourth season, now is a great time to support the show on Read more…

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By Major Pain Podcast, ago

Kait’s Journey with Miserable Malalignment Syndrome

Kait lives with miserable malalignment syndrome, which means that the bones in her legs are rotated abnormally. Since childhood her femurs were pointed inwards while her tibias rotated outwards, causing her knees to face each other. Even though this rotation was plainly visible to the naked eye, it still took Read more…

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By Major Pain Podcast, ago

Managing Somatic Symptom Disorder Inside a Multitude of Chronic Illnesses

Colby has 11 chronic illness and mental health diagnoses. These include chronic pain (currently diagnosed as fibromyalgia), PCOS (polycystic ovarian syndrome), asthma, IBS, eczema, PTSD, depression, anxiety, bipolar, ADHD and somatic symptom disorder. That last diagnosis might be the least well-known of Colby’s illnesses. According to psychiatry.org, “somatic symptom disorder Read more…

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By Major Pain Podcast, ago

Transposition of the Great Arteries: My Blood Flows Backwards

Like many babies born with transposition of the great arteries, Amelia was born blue. Her blood was not circulating to her entire body because the two main arteries leading blood away from her heart were switched, sending blood in the wrong direction. She was immediately helicoptered to a larger hospital Read more…

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By Major Pain Podcast, ago

Unpacking the Rage of 15 Years Living with Chronic Pain

MaKenzie has received a slew of chronic pain and chronic illness diagnoses over the years, including Chiari malformation, lupus, Sjogren’s disease and Hashimoto’s syndrome, but she isn’t focused on her diagnoses. She’s focused on managing the daily impact of her symptoms and the emotional toll this journey has taken. She Read more…

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By Major Pain Podcast, ago

Living with Mast Cell Activation Syndrome (MCAS)

For Meresa, one of the hardest parts of living with mast cell activation syndrome (MCAS) is the daily uncertainty. She says, “It’s still such an everyday variable disease. It really sucks a lot of the time. It’s really painful. People don’t understand what it is, they don’t always understand what Read more…

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By Major Pain Podcast, ago

Jesse Mercury on Starting the Major Pain Podcast and Seeking a Diagnosis for Mystery Illness

This week on the Major Pain podcast, our host Jesse is interviewed for a change! This interview is taken from a recent rheumatoid arthritis summit hosted by Andrea Dunn. She asks Jesse what inspired him to create the Major Pain podcast, inquires about his health journey and recent diagnosis of Read more…

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By Major Pain Podcast, ago

Living with Collagenous Gastritis

Ezra lives with collagenous gastritis (CG), one of the rarest conditions we’ve ever covered on the Major Pain podcast. Collagenous gastritis is characterized by a buildup of collagen in the digestive tract, which causes bumps or nodules to form. The most common symptoms are abdominal pain and anemia. Ezra has Read more…

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By Major Pain Podcast, ago

My Secret Life of Pain: Marie’s Journey With Pudendal Neuralgia

Marie’s road to developing pudendal neuralgia is long and complicated. Pudendal neuralgia is a chronic pain condition involving damage to the pudendal nerve, which is the main nerve that branches to the genitals. Marie now lives with constant pain that is worsened by sitting, so she is forced to either Read more…

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By Major Pain Podcast, ago