major pain Archives

Major Pain Podcast Episodes

Kevin Has A New Diagnosis, and New Insight Into Applying for Disability

This week Kevin returns to the Major Pain podcast to catch us up on his health journey. The big news is that he was recently diagnosed with Ménière’s disease, adding one more diagnosis to his already long list. He was also finally approved for disability, and he discusses this process Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 3 daysJuly 24, 2024 ago

Major Pain Podcast Episodes

Living with Systemic Juvenile Idiopathic Arthritis, AKA Still’s Disease

While AK’s peers were shopping for prom dresses and applying to college, she spent senior year self-advocating and undergoing hospitalizations. AK had been diagnosed with juvenile arthritis at 12 years old after experiencing jaw and ankle pain. Subsequently, the flares became increasingly systemic with daily spiking fevers. AK shares how Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 1 weekJuly 17, 2024 ago

Major Pain Podcast Episodes

Ali DiGiacomo On Spoonies Being Accused of Using Illness for Likes and Views

A few years ago, Ali DiGiacomo was shocked to discover her face on a Daily Mail article called ‘Addicted to being sad: Teenage girls with invisible illnesses – known as ‘Spoonies’ – post TikToks of themselves crying or in hospital to generate thousands of likes – as experts raise concerns Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 2 weeksJuly 10, 2024 ago

Major Pain Podcast Episodes

Living with Hypersomnia: Sunny’s Story

Sunny did not consider her diagnosis as a major pain, but rather a “major inconvenience,” until she realized how affected her daily life was. Since childhood, Sunny battled to stay awake during the day. She experienced sudden waves of drowsiness and her eyelids feeling heavy, which often would not resolve Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 3 weeksJuly 3, 2024 ago

Major Pain Podcast Episodes

Avery’s Acromegaly: “It’s All in Your Head”… but Something Is Actually in My Head!

Avery was gearing up for senior year of college when she began to notice painful changes in her body. Her initial symptoms included difficulty sleeping and intense jaw pain. Avery also began to notice growth in her facial features, hands and feet. She thought these changes could be from another Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 1 monthJune 26, 2024 ago

Major Pain Podcast Episodes

Demystifying Functional Neurological Disorder: Sydney’s Story

Sydney Anne Bennett lives with functional neurological disorder (FND), which is a condition where the brain doesn’t communicate properly with the nervous system. Sydney’s symptoms include chronic pain, hallucinations, loss of taste, trouble sleeping, hand paralysis, seizures, ataxia, muscle spasms, fatigue, and difficulty using her legs. Consequently, after a year Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 1 monthJune 19, 2024 ago

Major Pain Podcast Episodes

Rho’s Chronic Illness Journey: “It’s Been A Long Difficult Fight”

Rho has a self-described laundry list of diagnoses, and she has had to fight for every single one. Her list includes autism, ADHD, bipolar 2, CPTSD, excoriation disorder, keratoconus, IBS, GERD, chronic kidney disease, tactile allodynia and chronic pain. Along the way she faced constant medical gaslighting and dehumanizing treatment, Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 2 monthsJune 5, 2024 ago

Major Pain Podcast Episodes

JDS Creative Academy: Empowering Creativity and Disability Inclusion

This week on the Major Pain podcast we speak with Diane Strand, founder of the nonprofit JDS Creative Academy, which offers training and job placement in the entertainment industry to people with disabilities. JDS caters to individuals with a passion for creativity who hope to turn this passion into a Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 2 monthsMay 29, 2024 ago

Major Pain Podcast Episodes

Cianna’s Journey: How Chronic Illness Changed This 19 Year Old’s Life

Cianna has been a dancer her whole life, saying “as soon as I could walk I was dancing.” Over the past few years chronic illness has altered her life’s course, and frustratingly taken her away from dance. While it has been difficult to leave her life’s passion behind, Cianna has Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 2 monthsMay 22, 2024 ago

Major Pain Podcast Episodes

Kenny Returns to Major Pain With New Diagnoses and a New Outlook

Kenny Alhadeff first appeared on the Major Pain podcast 3 years ago, sharing his experiences living in recovery from drug addiction and alcoholism. This year Kenny will celebrate his 40th year of sobriety. Since first appearing on the show Kenny has experienced the most intense chronic pain of his life, Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 2 monthsMay 15, 2024 ago