Major Pain Podcast Episodes

Maintaining Employment with a Disability: Learn if Vocational Rehabilitation is Right for You

Vocational rehabilitation (voc rehab) services are available in every city of the United States, but many qualifying individuals are unaware of this pathway towards long term employment. These services are designed to help people with diagnosed physical and intellectual disabilities, including some chronic illness, to find and maintain employment, or Read more…

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By Major Pain Podcast, ago

Andi and Jesse’s Health and Travel Updates!

Andi and Jesse share updates from their recent travels to New York and Florida, plus both of their health situations including Andi’s vocal injury and Jesse’s continued quest for a diagnosis. Jesse has seen significant improvements in his mobility, while being evaluated for mast cell activation syndrome (MCAS) and small Read more…

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By Major Pain Podcast, ago

Her Laundry List of Diagnoses Inspired a Children’s Book About Autoimmune Disease

Heather has accumulated an overwhelming number of medical diagnoses, including Sjogren’s disease, vasculitis, SLE lupus, new daily persistent headache disorder, small intestine bacterial overgrowth (SIBO) and endometriosis. At 20 years old her boyfriend (who is now her husband) sat her down to say she was sick and needed to go Read more…

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By Major Pain Podcast, ago

Finding the Silver Bullet for Chronic Fatigue Syndrome

In 2012 Simon was dating a lovely young woman who happened to have mono. She warned Simon against kissing her as she might be contagious, but he threw caution to the wind assuming catching mono would only be a temporary setback. Indeed he did get sick with mono, and was Read more…

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By Major Pain Podcast, ago

Living with Multi-Generational Ehlers-Danlos Syndrome

Kenneth’s family has a multi-generational history with Ehlers-Danlos syndrome (EDS). Family members with the disease include his mother, uncle, grandmother and great grandmother. Kenneth was diagnosed at just 2 years old while being examined for a knee injury. A trauma caused massive swelling in his knee, producing a hematoma the Read more…

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By Major Pain Podcast, ago

A Diagnosis from Every Category: Ankylosing Spondylitis, Vestibular Migraines, Bipolar Disorder and More

Kevin has been on a diagnostic roller coaster over the past few years. He was working in a management position at a museum when he started having trouble walking, difficulty straightening up and intense pain in his feet. He also developed uveitis in his eyes, a painful inflammatory condition that Read more…

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By Major Pain Podcast, ago

Pauline’s Quest for an MCAS Diagnosis

Everybody has mast cells in their body, as they play a critical role in allergic response. Mast cells release mediators to attack allergens, but can sometimes overreact when no allergen is present. This is the case for Pauline, who was recently diagnosed with mast cell activation syndrome (MCAS). Though her Read more…

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By Major Pain Podcast, ago

Start Your Day with Good Vibes: Musical Morning Affirmations Created by Parents for their Autistic Children

Melissa and Steve are parents to two young boys on the autism spectrum. They had noticed their older son developing a black and white view of good and bad behavior, leading to self-punishment over any perceived mistakes. Melissa has a background in psychology, and wanted to introduce her boys to Read more…

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By Major Pain Podcast, ago

Living with Type 1 Gaucher Disease

Adrianna was born with type 1 Gaucher Disease, a genetic condition in which an enzyme is missing from the body. This leads to a build up of fatty cells that can cause damage throughout the body. For Adrianna, this has led to intense bone pain, low platelet count, anemia, extreme Read more…

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By Major Pain Podcast, ago

A Quick Update from Jesse

I’m in the midst of a flare-up that has prevented me from finishing this week’s episode, but I have some news that felt worth sharing! I decided to release this short update to let you all know what’s going on.

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By Major Pain Podcast, ago