undiagnosed Archives

Major Pain Podcast Episodes

Living with Cyclic Vomiting Syndrome

Raven’s journey to be diagnosed with cyclic vomiting syndrome (CVS) was deeply traumatic, not only due to their debilitating disease but from the way doctors treated them along the way. CVS is characterized by episodes of intense vomiting that can be severe enough to warrant emergency care. Raven says it’s Read more…

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By Major Pain Podcast, 3 monthsJune 21, 2023 ago

Major Pain Podcast Episodes

The Infuriating Contradictions of Undiagnosed Illness

Courtney refers to herself as a hot potato patient, being passed from specialist to specialist in search of a diagnosis to her mystery illness, but none of these providers have been willing to keep digging until an answer is found. She used to be an avid globe trotter while working Read more…

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By Major Pain Podcast, 5 monthsApril 19, 2023 ago

Major Pain Podcast Episodes

Season 3 Premiere! Catching Up With Previous Guests

This week we kick off the third season of Major Pain by catching up with previous guests! First we’ll check in with Andrew, who originally appeared in December 2021 to discuss mild traumatic brain injury (MTBI). He has been slowly improving since then, feeling as if a new self is Read more…

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By Major Pain Podcast, 6 monthsApril 12, 2023 ago

Major Pain Podcast Episodes

Level 10 Pain, the Mayo Clinic, Aphasia and Sarcoidosis: Claudia’s Journey So Far

Claudia Alick is an activist and influencer with a transmedia social justice practice, creating spaces for entertainment, education and empowerment by and for marginalized communities. While working as a disability advocate in 2009, Claudia found themself suddenly experiencing what they describe as mysterious level 10 pain, accompanied by mobility issues Read more…

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By Major Pain Podcast, 1 yearSeptember 14, 2022 ago

Major Pain Podcast Episodes

Stacy’s Chronic Illness Duo: Hashimoto’s Thyroiditis and Endometriosis

Stacy has been diagnosed with two chronic illnesses, but getting those diagnoses was an uphill battle. In 2019 she started experiencing extreme exhaustion, brain fog and weight fluctuations, but repeated visits to multiple doctors revealed nothing. In her tenacity to uncover the truth she started researching potential tests to request, Read more…

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By Major Pain Podcast, 1 yearJuly 13, 2022 ago

Major Pain Podcast Episodes

Living with POTS, HEDS, Rapid Gastric Emptying and More

Katherine has been chronically ill her whole life, but didn’t realize it until the situation became debilitating in college. She was always a flexible kid, able to twist, contort and bend in all sorts of unusual ways. In high school she started experiencing chest pain and heart palpitations, but was Read more…

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By Major Pain Podcast, 1 yearJune 22, 2022 ago

Major Pain Podcast Episodes

Finally Diagnosed: Her Genetic Condition Hid in Plain Sight for Decades

When Ashley scheduled an interview for the Major Pain podcast to discuss her chronic illness, she was prepared to talk about living with an undiagnosed disease. But to her shock, just weeks before recording her interview, a rheumatologist officially confirmed a diagnosis. Ashley found herself looking back on her life Read more…

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By Major Pain Podcast, 1 yearMay 25, 2022 ago

Major Pain Podcast Episodes

Living with a Mysterious Seizure Disorder

Emily has been having mysterious seizures since she was 8 or 9 years old. Her preliminary tests all came back normal, and none of the adults responsible for her care pushed any further for a diagnosis. Over time the seizures blended into her daily life, becoming a normal occurrence in Read more…

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By Major Pain Podcast, 2 yearsMarch 16, 2022 ago

Major Pain Podcast Episodes

Still Undiagnosed and More Confused than Ever

Jesse’s mystery illness continues to go undiagnosed, and recent liver biopsy results have plunged the situation into even murkier waters. In this episode of the Major Pain podcast he sits down with his partner Andi to discuss the evolving situation. They discuss the challenges of having an undiagnosed and elusive Read more…

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By Major Pain Podcast, 2 yearsFebruary 23, 2022 ago

Major Pain Podcast Episodes

Beginning the Diagnostic Journey for a Mystery Illness

Mak lived with health issues for years, but didn’t realize she might have an underlying illness until Covid-19 shut down the world. A musical theater performer and dancer, Mak was accustomed to her body being in pain after strenuous use and assumed it was normal. But when the world went Read more…

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By Major Pain Podcast, 2 yearsAugust 11, 2021 ago