undiagnosed – Major Pain

Major Pain Podcast Episodes

Level 10 Pain, the Mayo Clinic, Aphasia and Sarcoidosis: Claudia’s Journey So Far

Claudia Alick is an activist and influencer with a transmedia social justice practice, creating spaces for entertainment, education and empowerment by and for marginalized communities. While working as a disability advocate in 2009, Claudia found themself suddenly experiencing what they describe as mysterious level 10 pain, accompanied by mobility issues Read more…

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By Major Pain Podcast, 7 monthsSeptember 14, 2022 ago

Major Pain Podcast Episodes

Stacy’s Chronic Illness Duo: Hashimoto’s Thyroiditis and Endometriosis

Stacy has been diagnosed with two chronic illnesses, but getting those diagnoses was an uphill battle. In 2019 she started experiencing extreme exhaustion, brain fog and weight fluctuations, but repeated visits to multiple doctors revealed nothing. In her tenacity to uncover the truth she started researching potential tests to request, Read more…

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By Major Pain Podcast, 9 monthsJuly 13, 2022 ago

Major Pain Podcast Episodes

Living with POTS, HEDS, Rapid Gastric Emptying and More

Katherine has been chronically ill her whole life, but didn’t realize it until the situation became debilitating in college. She was always a flexible kid, able to twist, contort and bend in all sorts of unusual ways. In high school she started experiencing chest pain and heart palpitations, but was Read more…

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By Major Pain Podcast, 9 monthsJune 22, 2022 ago

Major Pain Podcast Episodes

Finally Diagnosed: Her Genetic Condition Hid in Plain Sight for Decades

When Ashley scheduled an interview for the Major Pain podcast to discuss her chronic illness, she was prepared to talk about living with an undiagnosed disease. But to her shock, just weeks before recording her interview, a rheumatologist officially confirmed a diagnosis. Ashley found herself looking back on her life Read more…

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By Major Pain Podcast, 10 monthsMay 25, 2022 ago

Major Pain Podcast Episodes

Living with a Mysterious Seizure Disorder

Emily has been having mysterious seizures since she was 8 or 9 years old. Her preliminary tests all came back normal, and none of the adults responsible for her care pushed any further for a diagnosis. Over time the seizures blended into her daily life, becoming a normal occurrence in Read more…

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By Major Pain Podcast, 1 yearMarch 16, 2022 ago

Major Pain Podcast Episodes

Still Undiagnosed and More Confused than Ever

Jesse’s mystery illness continues to go undiagnosed, and recent liver biopsy results have plunged the situation into even murkier waters. In this episode of the Major Pain podcast he sits down with his partner Andi to discuss the evolving situation. They discuss the challenges of having an undiagnosed and elusive Read more…

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By Major Pain Podcast, 1 yearFebruary 23, 2022 ago

Major Pain Podcast Episodes

Beginning the Diagnostic Journey for a Mystery Illness

Mak lived with health issues for years, but didn’t realize she might have an underlying illness until Covid-19 shut down the world. A musical theater performer and dancer, Mak was accustomed to her body being in pain after strenuous use and assumed it was normal. But when the world went Read more…

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By Major Pain Podcast, 2 yearsAugust 11, 2021 ago

Major Pain Podcast Episodes

Rolling with a Mystery Disability

Like millions of other Americans, Mya suffers from a disabling undiagnosed disease. She experiences constant pain, brain fog, and requires a wheelchair to be mobile. But she is also a viral TikTok sensation, known for her joyous attitude, dance moves and social activism on behalf of the disabled community. In Read more…

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By Major Pain Podcast, 2 yearsMay 19, 2021 ago