Living with CREST, aka Limited Scleroderma

When Cammie and Evan’s two boys were 1 and 2 years old, Cammie was diagnosed with CREST disease. CREST, also known as limited scleroderma, is an intensely painful rheumatic condition with a wide variety of symptoms that progressively affect the entire body. Cammie was told if she did everything right Read more…

Rolling with a Mystery Disability

Like millions of other Americans, Mya suffers from a disabling undiagnosed disease. She experiences constant pain, brain fog, and requires a wheelchair to be mobile. But she is also a viral TikTok sensation, known for her joyous attitude, dance moves and social activism on behalf of the disabled community. In Read more…

Living with Charcot-Marie-Tooth Muscular Dystrophy

Charcot-Marie-Tooth (CMT) is a rare form of muscular dystrophy that causes damage to peripheral nerves. It manifests in a variety of ways depending on the individual, but generally causes degenerative muscle weakness and atrophy in the arms and legs. For Brandon Sullivan, it has manifested in having to walk painfully Read more…

Living in Recovery from Drug Addiction and Alcoholism

Kenny Alhadeff is the chairman of Elttaes Enterprises, the Alhadeff Family Charitable Fund and a Broadway producer. He is also a drug addict and alcoholic, who has been successfully living in recovery for 36 years. In this episode of the Major Pain podcast, Kenny shares the story of learning to Read more…

Living with a Chronic Mystery Illness

Jesse Mercury has been experiencing bizarre health symptoms on and off for most of his life. His symptoms include cognitive impairment, inability to control his arms and legs, difficulty speaking, muscle spasms, extreme fatigue and chronic pain. Throughout his life these symptoms have become increasingly severe, to the point where Read more…