disease Archives

Major Pain Podcast Episodes

Living with Multiple Diagnoses and Multiple Mysteries

Stacey experiences a wide variety of complex health issues that impact her daily life. Doctors have diagnosed and labeled her with many things, including autoimmune diabetes, fibromyalgia, severe anxiety with agoraphobia, bipolar disorder and schizophrenia. Living inside such a multifaceted symptom picture has been extremely challenging, especially since doctors can’t Read more…

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By Major Pain Podcast, 3 yearsAugust 4, 2021 ago

Major Pain Podcast Episodes

Living with Neuromyelitis Optica (NMO)

Six weeks before finishing her residency in internal medicine, Summer started experiencing bizarre neurological symptoms in her left leg. Instead of focusing on becoming a doctor she suddenly became the patient, searching for answers to her mysterious symptoms. Summer was initially misdiagnosed with multiple sclerosis, learning years later that she Read more…

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By Major Pain Podcast, 3 yearsJuly 28, 2021 ago

Major Pain Podcast Episodes

Living with the EDS Triad: Ehlers-Danlos, POTS and Mast Cell Disease

As a child, Morgan didn’t realize it was unusual to be in constant pain. She thought it was normal for joints to constantly pop out of place, to be hyper sensitive to foods and environmental factors, and to experience constant dizzy spells with risk of fainting. As she got older Read more…

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By Major Pain Podcast, 3 yearsJuly 21, 2021 ago

Major Pain Podcast Episodes

Living with Keratoconus, a Rare Eye Disease

Imagine performing without being able to see the edges of the stage, or worrying that your eyes could rupture before the show’s end. What sounds like a horrible nightmare was a reality for Sarah, a Seattle based actor living with keratoconus. This rare eye disease causes a bulging and thinning Read more…

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By Major Pain Podcast, 3 yearsJuly 14, 2021 ago

Major Pain Podcast Episodes

Living with Diffuse Scleroderma, Post Stem Cell Transplant

Shawna has been through more than most 29 year olds. She has diffuse scleroderma, also known as systemic sclerosis, a disease characterized by hardening of the skin and potentially life-threatening effects to internal organs. While this disease normally effects older individuals, Shawna started noticing symptoms at just 14 years old. Read more…

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By Major Pain Podcast, 3 yearsJuly 7, 2021 ago

Major Pain Podcast Episodes

Living with Multiple Sclerosis: Diagnosed at 19, Thriving at 34

15 years after her multiple sclerosis diagnosis, Lauren has learned to live comfortably and happily with her disease. She now conceives of MS as a friendly neighbor, something that pops by and says hello from time to time without weighing upon her daily life. Reflecting back on her diagnosis at Read more…

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By Major Pain Podcast, 3 yearsJune 16, 2021 ago

Major Pain Podcast Episodes

Living with CREST, aka Limited Scleroderma

When Cammie and Evan’s two boys were 1 and 2 years old, Cammie was diagnosed with CREST disease. CREST, also known as limited scleroderma, is an intensely painful rheumatic condition with a wide variety of symptoms that progressively affect the entire body. Cammie was told if she did everything right Read more…

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By Major Pain Podcast, 3 yearsJune 9, 2021 ago

Major Pain Podcast Episodes

Rolling with a Mystery Disability

Like millions of other Americans, Mya suffers from a disabling undiagnosed disease. She experiences constant pain, brain fog, and requires a wheelchair to be mobile. But she is also a viral TikTok sensation, known for her joyous attitude, dance moves and social activism on behalf of the disabled community. In Read more…

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By Major Pain Podcast, 3 yearsMay 19, 2021 ago

Major Pain Podcast Episodes

Living with Charcot-Marie-Tooth Muscular Dystrophy

Charcot-Marie-Tooth (CMT) is a rare form of muscular dystrophy that causes damage to peripheral nerves. It manifests in a variety of ways depending on the individual, but generally causes degenerative muscle weakness and atrophy in the arms and legs. For Brandon Sullivan, it has manifested in having to walk painfully Read more…

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By Major Pain Podcast, 3 yearsMay 12, 2021 ago

Major Pain Podcast Episodes

Living in Recovery from Drug Addiction and Alcoholism

Kenny Alhadeff is the chairman of Elttaes Enterprises, the Alhadeff Family Charitable Fund and a Broadway producer. He is also a drug addict and alcoholic, who has been successfully living in recovery for 36 years. In this episode of the Major Pain podcast, Kenny shares the story of learning to Read more…

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By Major Pain Podcast, 3 yearsApril 28, 2021 ago