When Cammie and Evan’s two boys were 1 and 2 years old, Cammie was diagnosed with CREST disease. CREST, also known as limited scleroderma, is an intensely painful rheumatic condition with a wide variety of symptoms that progressively affect the entire body. Cammie was told if she did everything right she may have 8 to10 good years left. 9 years later she is still determinedly living her life.

In this episode of the Major Pain podcast, Cammie and Evan share what their lives have been like since Cammie’s diagnosis. They talk about the impact of this disease on their relationship, and how they’ve raised their boys with the knowledge that their mom won’t be around forever. They also share the medications and coping mechanisms that have been helpful, all of which were difficult to come by since this disease is so poorly understood.

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4 Comments

PNut · July 5, 2021 at 9:48 am

How do I email this woman Cammie re. CREST. I recently diagnosed . Thank you for this ,this is the most info I’ve been given regarding this disease. My docs are useless they pass me around. Thank you again for this podcast . You might have help me prolong my life in a great way. I felt so alone until tonight.

    Major Pain Podcast · July 5, 2021 at 5:45 pm

    I’m so sorry your doctors have been useless. I will pass your info along to Cammie. I’m so glad.the show helped you feel less alone! The next episode coming out Wednesday features someone with diffuse scleroderma which is very similar to CREST, I hope it is useful as well.

priscilla weems · July 8, 2021 at 3:10 am

I will be listening and sharing your podcast! Thank you again!😊

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