Many people with chronic pain, undiagnosed disease or invisible illness run into constant barriers when seeking medical care. Doctors often don’t take their symptoms seriously, or assume nothing is wrong when they can’t immediately pinpoint a cause. For people dealing with dynamic illness, understanding the medical system well enough to advocate for themselves can take years of hard earned experience.
In this episode of the Major Pain podcast, registered nurse Mira gives us an insiders view of the American healthcare system, including the main problems she sees in the medical infrastructure. We discuss the many barriers people dealing with chronic illness can face including finding a helpful doctor, being denied care and the difficulty of pursuing pain relief in a system burdened by the opioid epidemic. Mira also shares her experiences working in hospice care and battling on the front lines of the Covid-19 pandemic, where witnessing death helped shape her attitude towards life.
RESEARCH OPPORTUNITIES: https://rarepatientvoice.com/MajorPainPodcast/