medication Archives

Major Pain Podcast Episodes

Lupus Nephritis Inspired Marimee Toya Jules to Found the Village Tree Health Support Network

In her early 20s, Marimee (who goes by Toya) was diagnosed with lupus nephritis. This is a complication found in people with systemic lupus, in which lupus autoantibodies damage the kidneys, causing impaired function or even kidney failure. At first, Toya was horrified to discover she had this disease, being Read more…

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By Major Pain Podcast, 1 yearMarch 8, 2023 ago

Major Pain Podcast Episodes

Micah’s Breakthrough Adult-Onset Epilepsy Improved Dramatically With a Responsive Neurostimulation System (RNS)

As a child, Micah would experience episodes where he would space out or become manic in class, leading his teachers to assume he had a mood disorder. He would have night terrors where his consciousness would expand beyond his body, believing he was connected to something otherworldly. He chalked it Read more…

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By Major Pain Podcast, 1 yearFebruary 15, 2023 ago

Major Pain Podcast Episodes

Crohn’s Disease and Deep Vein Thrombosis Inspired Douglas To Become a Chinese Medicine Practitioner and Sex Therapist

Throughout his life, Douglas had been plagued by random episodes of fever, but they usually passed on their own and he was able to mostly ignore them. That all changed in his late 20s, when a particularly horrible fever took him to the emergency room. Doctors discovered an infection from Read more…

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By Major Pain Podcast, 1 yearJanuary 11, 2023 ago

Major Pain Podcast Episodes

Simon’s Silver Bullet for Chronic Fatigue Syndrome

In 2012 Simon was dating a lovely young woman who happened to have mono. She warned Simon against kissing her as she might be contagious, but he threw caution to the wind assuming catching mono would only be a temporary setback. Indeed he did get sick with mono, and was Read more…

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By Major Pain Podcast, 1 yearNovember 9, 2022 ago

Major Pain Podcast Episodes

Pauline’s Quest for an MCAS Diagnosis

Everybody has mast cells in their body, as they play a critical role in allergic response. Mast cells release mediators to attack allergens, but can sometimes overreact when no allergen is present. This is the case for Pauline, who was recently diagnosed with mast cell activation syndrome (MCAS). Though her Read more…

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By Major Pain Podcast, 2 yearsOctober 19, 2022 ago

Major Pain Podcast Episodes

Living with Type 1 Gaucher Disease

Adrianna was born with type 1 Gaucher Disease, a genetic condition in which an enzyme is missing from the body. This leads to a build up of fatty cells that can cause damage throughout the body. For Adrianna, this has led to intense bone pain, low platelet count, anemia, extreme Read more…

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By Major Pain Podcast, 2 yearsOctober 5, 2022 ago

Major Pain Podcast Episodes

Born Positive: Living with HIV since Birth

Joseph Kibler is a 32 year old actor and writer who was born HIV positive. As a baby he wasn’t expected to live past 4 years old, but an experimental drug trial run by Dr. Fauci in the 80s gave him the chance to thrive. The virus altered the gray Read more…

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By Major Pain Podcast, 2 yearsNovember 10, 2021 ago

Major Pain Podcast Episodes

Registered Nurse on Navigating Healthcare System for Pain Patients

Many people with chronic pain, undiagnosed disease or invisible illness run into constant barriers when seeking medical care. Doctors often don’t take their symptoms seriously, or assume nothing is wrong when they can’t immediately pinpoint a cause. For people dealing with dynamic illness, understanding the medical system well enough to Read more…

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By Major Pain Podcast, 3 yearsJune 23, 2021 ago

Major Pain Podcast Episodes

Living with Multiple Sclerosis: Diagnosed at 19, Thriving at 34

15 years after her multiple sclerosis diagnosis, Lauren has learned to live comfortably and happily with her disease. She now conceives of MS as a friendly neighbor, something that pops by and says hello from time to time without weighing upon her daily life. Reflecting back on her diagnosis at Read more…

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By Major Pain Podcast, 3 yearsJune 16, 2021 ago

Major Pain Podcast Episodes

Living with Generalized Anxiety Disorder

Like millions of others in the US, Yael lives with generalized anxiety disorder (GAD). As is often the case, Yael experienced the effects of this disorder from an early age, her reality being that of constant worry and intruding thoughts of disaster. It was not until receiving her GAD diagnosis Read more…

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By Major Pain Podcast, 3 yearsMay 5, 2021 ago