healthcare Archives

Major Pain Podcast Episodes

Lupus Nephritis Inspired Marimee Toya Jules to Found the Village Tree Health Support Network

In her early 20s, Marimee (who goes by Toya) was diagnosed with lupus nephritis. This is a complication found in people with systemic lupus, in which lupus autoantibodies damage the kidneys, causing impaired function or even kidney failure. At first, Toya was horrified to discover she had this disease, being Read more…

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By Major Pain Podcast, 1 yearMarch 8, 2023 ago

Major Pain Podcast Episodes

Living with Multiple Autoimmune Diseases

According to the National Library of Medicine, about 25 percent of patients with an autoimmune disease will develop additional autoimmune diseases. That is definitely true of this week’s podcast guest, Vicky. Her first diagnosis of autoimmune rheumatoid arthritis came during high school, and she was diagnosed with Sjogren’s syndrome a Read more…

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By Major Pain Podcast, 1 yearFebruary 22, 2023 ago

Major Pain Podcast Episodes

Recovering from Multiple Chemical Sensitivities Through Neural Rewiring

While working as a hairstylist, Merideth was repeatedly exposed to chemicals that released formaldehyde. Eventually her health collapsed, and she found herself unable to continue working. Doctors recommended avoiding future exposure, but this proved insufficient as Meredith’s issues with chemical sensitivity began to expand exponentially. She became chronically ill, housebound Read more…

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By Major Pain Podcast, 1 yearDecember 21, 2022 ago

Major Pain Podcast Episodes

Approaching the Two Year Mark Living with Long Covid

Grace first contracted COVID-19 in October of 2020, having a fairly serious infection that almost required hospitalization. She caught COVID again just a month later, likely from a visit to the hospital. These back to back infections seemed to trigger an avalanche of health issues. Throughout 2021 she would be Read more…

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By Major Pain Podcast, 2 yearsJuly 27, 2022 ago

Major Pain Podcast Episodes

Living with Adult Cerebral Palsy, Seeking a Clear Care Pathway

Growing up in the UK, Emma received care and services that helped her adapt to life with cerebral palsy. For some patients this disease affects cognition and neurology, but Emma was born with a less severe form causing mostly physical impairment. She was a bit clumsy and fell more often Read more…

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By Major Pain Podcast, 2 yearsMarch 23, 2022 ago

Major Pain Podcast Episodes

Fighting Medical Gaslighting while Living with Chronic Illness

Aimée has been experiencing chronic pain and increasingly debilitating neurological symptoms throughout her life. She was first diagnosed with fibromyalgia at just 12 years old, at a time when that diagnosis carried little to no actionable recourse and significant stigma. Due to a lack of helpful doctors in the face Read more…

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By Major Pain Podcast, 2 yearsNovember 3, 2021 ago

Major Pain Podcast Episodes

Registered Nurse on Navigating Healthcare System for Pain Patients

Many people with chronic pain, undiagnosed disease or invisible illness run into constant barriers when seeking medical care. Doctors often don’t take their symptoms seriously, or assume nothing is wrong when they can’t immediately pinpoint a cause. For people dealing with dynamic illness, understanding the medical system well enough to Read more…

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By Major Pain Podcast, 3 yearsJune 23, 2021 ago

Major Pain Podcast Episodes

Living with a Chronic Mystery Illness

Jesse Mercury has been experiencing bizarre health symptoms on and off for most of his life. His symptoms include cognitive impairment, inability to control his arms and legs, difficulty speaking, muscle spasms, extreme fatigue and chronic pain. Throughout his life these symptoms have become increasingly severe, to the point where Read more…

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By Major Pain Podcast, 3 yearsApril 14, 2021 ago