disorder

Fighting Medical Gaslighting while Living with Chronic Illness

Aimée has been experiencing chronic pain and increasingly debilitating neurological symptoms throughout her life. She was first diagnosed with fibromyalgia at just 12 years old, at a time when that diagnosis carried little to no actionable recourse and significant stigma. Due to a lack of helpful doctors in the face Read more…

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By Major Pain Podcast, ago

Life as a Spinal Cord Injury Survivor

Chris Stigas is an entrepreneur and accessibility activist. His first accessibility product, the HandiCup, fills the need for a simple, effective solution for carrying a beverage on a wheelchair or walker. He is the recipient of the 2020 Patti Dawson Activist of the Year Award for his work with Spinal Read more…

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By Major Pain Podcast, ago

Living with Idiopathic Ventricular Tachycardia

Jimmy and Charles met when they were 18 and 19 years old, just a few years after Charles had been diagnosed with idiopathic ventricular tachycardia (IVT). At 13 he underwent surgery to implant a pacemaker, which regulates his heart rate during IVT episodes when his heart beats chaotically. Charles was Read more…

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By Major Pain Podcast, ago

Living with Adrenal Cancer, Heart Failure, Diabetes Insipidus and More

Brooke has been diagnosed with over a dozen health conditions. Her diagnostic journey began with relatively manageable diseases including asthma, type 1 diabetes, rheumatoid arthritis and Hashimoto’s disease, but took an intense turn in her late 30s when she experienced heart failure, discovered an adrenal tumor, was diagnosed with diabetes Read more…

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By Major Pain Podcast, ago

Living with Ankylosing Spondylitis, Crohn’s Disease and Fibromyalgia

Elias has a trio of chronic pain syndromes, ankylosing spondylitis, Crohn’s disease and fibromyalgia. Ankylosing spondylitis is the least well-known of these conditions, and involves a cycle of inflammation, calcification, scarring and bone formation that can actually fuse vertebrae together over time. Crohn’s disease is a form of inflammatory bowel Read more…

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By Major Pain Podcast, ago

Living with Functional Neurological Disorder (FND)

Nolan had been living with unexplained exhaustion for years before their health flare-up kicked into high gear. Suddenly they were experiencing seizures, weakness, gait issues and vocal/motor ticks. When seeking answers from doctors they were often brushed off, having the reality of their symptoms denied when answers were not immediately Read more…

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By Major Pain Podcast, ago

Living with Nonspecific Interstitial Pneumonia

Frankie’s life has changed dramatically since developing nonspecific interstitial pneumonia (NSIP). She has the fibrotic form of the disease which causes permanent scarring of the lung tissue, making it harder to get oxygen into her lungs. Describing how it has changed her life she says, “I never sat still. And Read more…

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By Major Pain Podcast, ago

Late Stage Lyme Disease: Diagnosed 20 Years Later

At 11 years old, it was common for Emily to play in the grassy field of the buffalo farm where she grew up. One day she was bitten by a tick, developing a bullseye rash around the bite. Within weeks she developed a severe fever and hallucinations, but unfortunately the Read more…

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By Major Pain Podcast, ago

Tools to Overcome Crippling Social Anxiety

Many people don’t understand the severity of crippling social anxiety, and how it can prevent individuals from seeking experiences that might involve social interaction. People don’t just experience anxiety in social settings, but before and after those interactions as well. This anxiety manifests as fear of being watched, judged and Read more…

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By Major Pain Podcast, ago

Living with Histamine Intolerance

Many people suffer from seasonal allergies, or have experienced some form of environmental sensitivity in their lives. But for Elizabeth, navigating the world with histamine intolerance means she must be constantly vigilant about the foods and environments she is exposed to. Histamine intolerance sounds like a sensitivity to histamine, but Read more…

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By Major Pain Podcast, ago