Living with Hidradenitis Suppurativa

Joey Torre lives with hidradenitis suppurativa (HS), a painful, chronic skin condition that affects up to 2% of the population. The disease causes the formation of bumps, lesions, or boils in sweat gland areas, such as the armpits and groin. Joey also experiences extreme fatigue, which can sometimes accompany HS, Read more…

After Cavernous Malformation Surgery on Her Brain, Christina Developed Hypertrophic Olivary Degeneration

When Christina turned 40 she suddenly started having migraines every day. She was going to work as an accountant dealing with spreadsheets and math, while splitting headaches turned each day into relentless agony. After a month of this pain she finally went to see her doctor, who ordered an MRI. Read more…

Author Alexis Kline Discusses Her Chronic Illness and How It Informed Her Latest Book

As a child, Alexis Kline hoped to one day be a professional soccer player. That all changed at 12 years old during soccer tryouts when Alexis started feeling so weak and sore that she needed to visit the doctor. Her soccer dreams were dashed when she was diagnosed with dysautonomia, Read more…

Years After Being Propped Up as a Bipolar Success Story, Genevieve Questions the Messaging She Was Directed To Share

As a senior in high school, Genevieve won an essay contest writing about the changes she’d like to see with the stigma surrounding bipolar disorder. This brought her to the attention of a foundation aimed at raising bipolar awareness, and at 19 years old she began touring with a state Read more…

Crohn’s Disease and Deep Vein Thrombosis Inspired Douglas To Become a Chinese Medicine Practitioner and Sex Therapist

Throughout his life, Douglas had been plagued by random episodes of fever, but they usually passed on their own and he was able to mostly ignore them. That all changed in his late 20s, when a particularly horrible fever took him to the emergency room. Doctors discovered an infection from Read more…

Bekah’s Chronic Illness Was Misdiagnosed As Anxiety for Years

Bekah’s mysterious illness kicked into full gear when they were 14 years old. While cooking food one day they suddenly became extremely hot, fell to the floor and realized they were too weak to get back up. They were overcome by strange neurological sensations, feeling like their arm didn’t belong Read more…

Country Music Rising Star Annie Vander on Her Battle With CRPS

Annie Vander is a country music up-and-comer, who’s latest single ‘Falling into Nashville’ has been featured on the Music Row Country Breakout Chart. Just a few years ago Annie had no idea that her lifelong musical dreams were about to come true. She had built a career working with animals, Read more…

Doctors Fractured Her Neck During Childbirth, Then Gaslit Her for Years

In 1998 Bella was severely injured during childbirth. Her doctor accidentally stepped on the pedal to raise the table she was strapped to during a C-section, causing her feet to raise and neck to lower. She immediately complained of extreme neck pain, but was sent home in a disassociated state Read more…

Maintaining Employment with a Disability: Learn if Vocational Rehabilitation is Right for You

Vocational rehabilitation (voc rehab) services are available in every city of the United States, but many qualifying individuals are unaware of this pathway towards long term employment. These services are designed to help people with diagnosed physical and intellectual disabilities, mental health challenges, and some chronic illnesses to find and Read more…

Andi and Jesse’s Health and Travel Updates!

Andi and Jesse share updates from their recent travels to New York and Florida, plus both of their health situations including Andi’s vocal injury and Jesse’s continued quest for a diagnosis. Jesse has seen significant improvements in his mobility, while being evaluated for mast cell activation syndrome (MCAS) and small Read more…