Bekah’s Chronic Illness Was Misdiagnosed As Anxiety for Years

Bekah’s mysterious illness kicked into full gear when they were 14 years old. While cooking food one day they suddenly became extremely hot, fell to the floor and realized they were too weak to get back up. They were overcome by strange neurological sensations, feeling like their arm didn’t belong Read more…

Country Music Rising Star Annie Vander on Her Battle With CRPS

Annie Vander is a country music up-and-comer, who’s latest single ‘Falling into Nashville’ has been featured on the Music Row Country Breakout Chart. Just a few years ago Annie had no idea that her lifelong musical dreams were about to come true. She had built a career working with animals, Read more…

Doctors Fractured Her Neck During Childbirth, Then Gaslit Her for Years

In 1998 Bella was severely injured during childbirth. Her doctor accidentally stepped on the pedal to raise the table she was strapped to during a C-section, causing her feet to raise and neck to lower. She immediately complained of extreme neck pain, but was sent home in a disassociated state Read more…

Maintaining Employment with a Disability: Learn if Vocational Rehabilitation is Right for You

Vocational rehabilitation (voc rehab) services are available in every city of the United States, but many qualifying individuals are unaware of this pathway towards long term employment. These services are designed to help people with diagnosed physical and intellectual disabilities, mental health challenges, and some chronic illnesses to find and Read more…

Andi and Jesse’s Health and Travel Updates!

Andi and Jesse share updates from their recent travels to New York and Florida, plus both of their health situations including Andi’s vocal injury and Jesse’s continued quest for a diagnosis. Jesse has seen significant improvements in his mobility, while being evaluated for mast cell activation syndrome (MCAS) and small Read more…

Her Laundry List of Diagnoses Inspired a Children’s Book About Autoimmune Disease

Heather has accumulated an overwhelming number of medical diagnoses, including Sjogren’s disease, vasculitis, SLE lupus, new daily persistent headache disorder, small intestine bacterial overgrowth (SIBO) and endometriosis. At 20 years old her boyfriend (who is now her husband) sat her down to say she was sick and needed to go Read more…

Simon’s Silver Bullet for Chronic Fatigue Syndrome

In 2012 Simon was dating a lovely young woman who happened to have mono. She warned Simon against kissing her as she might be contagious, but he threw caution to the wind assuming catching mono would only be a temporary setback. Indeed he did get sick with mono, and was Read more…

Living with Multi-Generational Ehlers-Danlos Syndrome

Kenneth’s family has a multi-generational history with Ehlers-Danlos syndrome (EDS). Family members with the disease include his mother, uncle, grandmother and great grandmother. Kenneth was diagnosed at just 2 years old while being examined for a knee injury. A trauma caused massive swelling in his knee, producing a hematoma the Read more…

A Diagnosis from Every Category: Ankylosing Spondylitis, Vestibular Migraines, Bipolar Disorder and More

Kevin has been on a diagnostic roller coaster over the past few years. He was working in a management position at a museum when he started having trouble walking, difficulty straightening up and intense pain in his feet. He also developed uveitis in his eyes, a painful inflammatory condition that Read more…

Pauline’s Quest for an MCAS Diagnosis

Everybody has mast cells in their body, as they play a critical role in allergic response. Mast cells release mediators to attack allergens, but can sometimes overreact when no allergen is present. This is the case for Pauline, who was recently diagnosed with mast cell activation syndrome (MCAS). Though her Read more…