Beginning the Diagnostic Journey for a Mystery Illness

Mak lived with health issues for years, but didn’t realize she might have an underlying illness until Covid-19 shut down the world. A musical theater performer and dancer, Mak was accustomed to her body being in pain after strenuous use and assumed it was normal. But when the world went Read more…

Living with Multiple Diagnoses and Multiple Mysteries

Stacey experiences a wide variety of complex health issues that impact her daily life. Doctors have diagnosed and labeled her with many things, including autoimmune diabetes, fibromyalgia, severe anxiety with agoraphobia, bipolar disorder and schizophrenia. Living inside such a multifaceted symptom picture has been extremely challenging, especially since doctors can’t Read more…

Living with Neuromyelitis Optica (NMO)

Six weeks before finishing her residency in internal medicine, Summer started experiencing bizarre neurological symptoms in her left leg. Instead of focusing on becoming a doctor she suddenly became the patient, searching for answers to her mysterious symptoms. Summer was initially misdiagnosed with multiple sclerosis, learning years later that she Read more…

Registered Nurse on Navigating Healthcare System for Pain Patients

Many people with chronic pain, undiagnosed disease or invisible illness run into constant barriers when seeking medical care. Doctors often don’t take their symptoms seriously, or assume nothing is wrong when they can’t immediately pinpoint a cause. For people dealing with dynamic illness, understanding the medical system well enough to Read more…

Living with CREST, aka Limited Scleroderma

When Cammie and Evan’s two boys were 1 and 2 years old, Cammie was diagnosed with CREST disease. CREST, also known as limited scleroderma, is an intensely painful rheumatic condition with a wide variety of symptoms that progressively affect the entire body. Cammie was told if she did everything right Read more…

Living in Recovery from Drug Addiction and Alcoholism

Kenny Alhadeff is the chairman of Elttaes Enterprises, the Alhadeff Family Charitable Fund and a Broadway producer. He is also a drug addict and alcoholic, who has been successfully living in recovery for 36 years. In this episode of the Major Pain podcast, Kenny shares the story of learning to Read more…

What Is Chiropractic Care, and Can It Help My Pain?

As a child, Derek Strachan became interested in the workings of the human body after a doctor’s misdiagnosis almost cost him his leg. That passion to understand health and wellness led him to become a chiropractor, a practice in which trained specialists use their hands or special tools to adjust Read more…

Living with Seasonal Affective Disorder

Like many living in the Pacific Northwest, pediatric nurse Cara Pierson suffers from seasonal affective disorder, a type of seasonal depression that coincides with the winter months each year. As the science around mental health continues to evolve, it becomes increasingly clear just how much we don’t understand about the Read more…

Living with a Chronic Mystery Illness

Jesse Mercury has been experiencing bizarre health symptoms on and off for most of his life. His symptoms include cognitive impairment, inability to control his arms and legs, difficulty speaking, muscle spasms, extreme fatigue and chronic pain. Throughout his life these symptoms have become increasingly severe, to the point where Read more…