Living with Histamine Intolerance

Many people suffer from seasonal allergies, or have experienced some form of environmental sensitivity in their lives. But for Elizabeth, navigating the world with histamine intolerance means she must be constantly vigilant about the foods and environments she is exposed to. Histamine intolerance sounds like a sensitivity to histamine, but Read more…

Beginning the Diagnostic Journey for a Mystery Illness

Mak lived with health issues for years, but didn’t realize she might have an underlying illness until Covid-19 shut down the world. A musical theater performer and dancer, Mak was accustomed to her body being in pain after strenuous use and assumed it was normal. But when the world went Read more…

Living with Multiple Diagnoses and Multiple Mysteries

Stacey experiences a wide variety of complex health issues that impact her daily life. Doctors have diagnosed and labeled her with many things, including autoimmune diabetes, fibromyalgia, severe anxiety with agoraphobia, bipolar disorder and schizophrenia. Living inside such a multifaceted symptom picture has been extremely challenging, especially since doctors can’t Read more…

Living with Neuromyelitis Optica (NMO)

Six weeks before finishing her residency in internal medicine, Summer started experiencing bizarre neurological symptoms in her left leg. Instead of focusing on becoming a doctor she suddenly became the patient, searching for answers to her mysterious symptoms. Summer was initially misdiagnosed with multiple sclerosis, learning years later that she Read more…

Jesse’s Health Update, Travel Accessibility, Listener Questions with Andi

This week we have a community focused episode with Jesse and Andi. First they share an email from listener Morgan, and discuss the ramifications of multiple misdiagnoses when searching for answers to a mystery disease. Then they dive into Jesse’s health update, including progress towards finding a diagnosis and the Read more…

Rolling with a Mystery Disability

Like millions of other Americans, Mya suffers from a disabling undiagnosed disease. She experiences constant pain, brain fog, and requires a wheelchair to be mobile. But she is also a viral TikTok sensation, known for her joyous attitude, dance moves and social activism on behalf of the disabled community. In Read more…

Living with Charcot-Marie-Tooth Muscular Dystrophy

Charcot-Marie-Tooth (CMT) is a rare form of muscular dystrophy that causes damage to peripheral nerves. It manifests in a variety of ways depending on the individual, but generally causes degenerative muscle weakness and atrophy in the arms and legs. For Brandon Sullivan, it has manifested in having to walk painfully Read more…

Yael

Living with Generalized Anxiety Disorder

Like millions of others in the US, Yael lives with generalized anxiety disorder (GAD). As is often the case, Yael experienced the effects of this disorder from an early age, her reality being that of constant worry and intruding thoughts of disaster. It was not until receiving her GAD diagnosis Read more…

Living in Recovery from Drug Addiction and Alcoholism

Kenny Alhadeff is the chairman of Elttaes Enterprises, the Alhadeff Family Charitable Fund and a Broadway producer. He is also a drug addict and alcoholic, who has been successfully living in recovery for 36 years. In this episode of the Major Pain podcast, Kenny shares the story of learning to Read more…