experience

After Complete Renal Failure, this Former Megachurch Pastor Found Clarity During Dialysis

At 29 years old, Zac’s lifelong mysterious illness would finally come in to focus. He had always believed something was wrong in his body, but his religious family insisted he pray away his ailments without allowing for traditional doctor visits. He grew up to become a youth pastor in a Read more…

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By Major Pain Podcast, ago

Living with Two Invisible Conditions: Hypermobile Ehlers-Danlos (HEDS) and Autism

Brandy grew up knowing she was different. She struggled both socially and physically, having problems picking up social cues while constantly experiencing injuries and joint dislocations. When seeking help she was disbelieved, shrugged off, or accused of drug seeking behavior. Brandy tried to push through and be strong, but her Read more…

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By Major Pain Podcast, ago

I’ve Passed Over 400 Kidney Stones, And They Just Keep Coming

Anyone who has passed a kidney stone will tell you of the excruciating pain, often citing it as the worst physical pain they have ever experienced. The idea of passing two stones a month indefinitely would make anyone recoil in horror, but that has been Erik’s reality since he was Read more…

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By Major Pain Podcast, ago

Autistic but Undiagnosed: Seeking Answers in Adulthood

Throughout Minna’s childhood she always felt different from her peers, as if everyone else had been given a manual on how to function that she had somehow missed. She struggled with sensory overload and difficulty managing social interaction, constantly needing to excuse herself from class to take breaks. As she Read more…

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By Major Pain Podcast, ago

Living with Friedreich’s Ataxia

When Sydni was 7 or 8 years old she started exhibiting symptoms of instability and difficulty walking. At 10 she was diagnosed with Friedreich’s ataxia (FA), a rare inherited neurodegenerative disease. Both of her parents were unknowing carriers of the disease, giving birth to two children with FA. Over time Read more…

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By Major Pain Podcast, ago

Living with Keratoconus, a Rare Eye Disease

Imagine performing without being able to see the edges of the stage, or worrying that your eyes could rupture before the show’s end. What sounds like a horrible nightmare was a reality for Sarah, a Seattle based actor living with keratoconus. This rare eye disease causes a bulging and thinning Read more…

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By Major Pain Podcast, ago

Living with a Pituitary Adenoma

Three years ago Andi Alhadeff was stricken with a sudden influx of intrusive thoughts, a condition often associated with OCD, along with extreme anxiety and nausea. Blood tests showed elevated prolactin, a hormone produced by the pituitary gland. Further testing revealed that Andi had a pituitary adenoma (or prolactinoma), a Read more…

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By Major Pain Podcast, ago