Chronic Illness Author and Advocate Ilana Jacqueline Shares Her Rare Disease Journey

As a chronically ill child, Ilana was repeatedly accused of faking her illness when seeking medical care. Doctors refused to dig deeper into why this particular child was consistently afflicted with bacterial infections and viruses that took abnormally long to heal, choosing instead to blame the parents or Ilana herself. Read more…

Our One Year Anniversary! Catching Up with Previous Guests

This week we are celebrating the one year anniversary of the Major Pain podcast, kicking off the second season of the show by catching up with previous guests! India and Brooke each have a new diagnosis that offers some clarity, while still leaving big picture questions unanswered. Cammie has found Read more…

Living with Friedreich’s Ataxia

When Sydni was 7 or 8 years old she started exhibiting symptoms of instability and difficulty walking. At 10 she was diagnosed with Friedreich’s ataxia (FA), a rare inherited neurodegenerative disease. Both of her parents were unknowing carriers of the disease, giving birth to two children with FA. Over time Read more…