illness Archives

Major Pain Podcast Episodes

The Link Between Childhood Abuse and Endometriosis: A Survivor’s Personal Account

Amanda grew up experiencing constant trauma. Her mother was deeply abusive, to the point that Amanda’s father was given custody at 6 years old. He moved the family to California and joined a religious cult, where Amanda would continue to suffer abuse with nowhere to turn. Having lived through emotional, Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 2 yearsMay 4, 2022 ago

Major Pain Podcast Episodes

Living with Two Invisible Conditions: Hypermobile Ehlers-Danlos (HEDS) and Autism

Brandy grew up knowing she was different. She struggled both socially and physically, having problems picking up social cues while constantly experiencing injuries and joint dislocations. When seeking help she was disbelieved, shrugged off, or accused of drug seeking behavior. Brandy tried to push through and be strong, but her Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 2 yearsApril 27, 2022 ago

Major Pain Podcast Episodes

Caitlin’s Chronic Illness Puzzle: POTS, Spondylolisthesis, Hypermobility, FND and More

Many children beg their parents for a pony, but Caitlin actually made that dream a reality. She wasn’t allowed to have a pony until proving she could afford one and look after it by herself, so as a teenager she bought one in secret, finally informing her parents 10 months Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 2 yearsApril 20, 2022 ago

Major Pain Podcast Episodes

Chronic Headache and Pineal Gland Cyst, Weighing the Decision to Operate

Misty is a 43 year old massage therapist and artist with a complex medical history. Multiple motor vehicle accidents triggered a cycle of chronic pain, including a trauma induced lipoma in their low back that had to be surgically removed. Even with constant sharp pain in their right temple, their Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 2 yearsApril 6, 2022 ago

Major Pain Podcast Episodes

Living with Refractory Epilepsy

Tiffany had her first seizure at 16 years old. She had gone to bed after studying for a history test, and woke up the next day on a gurney bound for the hospital. This first seizure caught her completely by surprise, and for years seemed to be some sort of Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 2 yearsMarch 30, 2022 ago

Major Pain Podcast Episodes

Living with Adult Cerebral Palsy, Seeking a Clear Care Pathway

Growing up in the UK, Emma received care and services that helped her adapt to life with cerebral palsy. For some patients this disease affects cognition and neurology, but Emma was born with a less severe form causing mostly physical impairment. She was a bit clumsy and fell more often Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 2 yearsMarch 23, 2022 ago

Major Pain Podcast Episodes

Living with a Mysterious Seizure Disorder

Emily has been having mysterious seizures since she was 8 or 9 years old. Her preliminary tests all came back normal, and none of the adults responsible for her care pushed any further for a diagnosis. Over time the seizures blended into her daily life, becoming a normal occurrence in Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 2 yearsMarch 16, 2022 ago

Major Pain Podcast Episodes

I’ve Passed Over 400 Kidney Stones, And They Just Keep Coming

Anyone who has passed a kidney stone will tell you of the excruciating pain, often citing it as the worst physical pain they have ever experienced. The idea of passing two stones a month indefinitely would make anyone recoil in horror, but that has been Erik’s reality since he was Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 2 yearsMarch 9, 2022 ago

Major Pain Podcast Episodes

Living with Superior Mesenteric Artery Syndrome

A year ago, Chelyn suddenly lost the ability to keep food down. She was constantly throwing up, losing over 20 pounds in less than 5 months. Chelyn loves food, describing it as her love language, and was utterly confused by the sudden change in her body. Seeking help initially proved Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 2 yearsMarch 2, 2022 ago

Major Pain Podcast Episodes

Still Undiagnosed and More Confused than Ever

Jesse’s mystery illness continues to go undiagnosed, and recent liver biopsy results have plunged the situation into even murkier waters. In this episode of the Major Pain podcast he sits down with his partner Andi to discuss the evolving situation. They discuss the challenges of having an undiagnosed and elusive Read more…

Podcast: Play in new window | Download

By Major Pain Podcast, 2 yearsFebruary 23, 2022 ago