disorder Archives

Major Pain Podcast Episodes

Her Laundry List of Diagnoses Inspired a Children’s Book About Autoimmune Disease

Heather has accumulated an overwhelming number of medical diagnoses, including Sjogren’s disease, vasculitis, SLE lupus, new daily persistent headache disorder, small intestine bacterial overgrowth (SIBO) and endometriosis. At 20 years old her boyfriend (who is now her husband) sat her down to say she was sick and needed to go Read more…

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By Major Pain Podcast, 1 yearNovember 16, 2022 ago

Major Pain Podcast Episodes

Simon’s Silver Bullet for Chronic Fatigue Syndrome

In 2012 Simon was dating a lovely young woman who happened to have mono. She warned Simon against kissing her as she might be contagious, but he threw caution to the wind assuming catching mono would only be a temporary setback. Indeed he did get sick with mono, and was Read more…

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By Major Pain Podcast, 1 yearNovember 9, 2022 ago

Major Pain Podcast Episodes

Living with Multi-Generational Ehlers-Danlos Syndrome

Kenneth’s family has a multi-generational history with Ehlers-Danlos syndrome (EDS). Family members with the disease include his mother, uncle, grandmother and great grandmother. Kenneth was diagnosed at just 2 years old while being examined for a knee injury. A trauma caused massive swelling in his knee, producing a hematoma the Read more…

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By Major Pain Podcast, 1 yearNovember 2, 2022 ago

Major Pain Podcast Episodes

A Diagnosis from Every Category: Ankylosing Spondylitis, Vestibular Migraines, Bipolar Disorder and More

Kevin has been on a diagnostic roller coaster over the past few years. He was working in a management position at a museum when he started having trouble walking, difficulty straightening up and intense pain in his feet. He also developed uveitis in his eyes, a painful inflammatory condition that Read more…

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By Major Pain Podcast, 2 yearsOctober 26, 2022 ago

Major Pain Podcast Episodes

Pauline’s Quest for an MCAS Diagnosis

Everybody has mast cells in their body, as they play a critical role in allergic response. Mast cells release mediators to attack allergens, but can sometimes overreact when no allergen is present. This is the case for Pauline, who was recently diagnosed with mast cell activation syndrome (MCAS). Though her Read more…

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By Major Pain Podcast, 2 yearsOctober 19, 2022 ago

Major Pain Podcast Episodes

Start Your Day with Good Vibes: Musical Morning Affirmations Created by Parents for their Autistic Children

Melissa and Steve are parents to two young boys on the autism spectrum. They had noticed their older son developing a black and white view of good and bad behavior, leading to self-punishment over any perceived mistakes. Melissa has a background in psychology, and wanted to introduce her boys to Read more…

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By Major Pain Podcast, 2 yearsOctober 12, 2022 ago

Major Pain Podcast Episodes

Level 10 Pain, the Mayo Clinic, Aphasia and Sarcoidosis: Claudia’s Journey So Far

Claudia Alick is an activist and influencer with a transmedia social justice practice, creating spaces for entertainment, education and empowerment by and for marginalized communities. While working as a disability advocate in 2009, Claudia found themself suddenly experiencing what they describe as mysterious level 10 pain, accompanied by mobility issues Read more…

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By Major Pain Podcast, 2 yearsSeptember 14, 2022 ago

Major Pain Podcast Episodes

Living with Hyperhidrosis, the Excessive Sweating Disease

Kristen lives with a rarely talked about disease called hyperhidrosis, which causes excessive sweating from the moment she wakes up to the moment she goes to bed. This includes the usual spots people sweat such as under arms or the low back, but also places you wouldn’t expect such as Read more…

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By Major Pain Podcast, 2 yearsSeptember 7, 2022 ago

Major Pain Podcast Episodes

Back to Back Post Viral Illnesses from Epstein Barr Reactivation and COVID-19

In September of 2020 Jennifer came down with a serious illness. Naturally she assumed she had COVID, but repeated tests kept coming back negative. Her illness lasted an entire month, and she didn’t return to full health afterwards. She continued to have extreme fatigue, body aches, sore throat and headache. Read more…

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By Major Pain Podcast, 2 yearsAugust 24, 2022 ago

Major Pain Podcast Episodes

Recovering from Chronic Fatigue/Myalgic Encephalomyelitis with the Post Viral Podcast

Lindsay and Stu met in an online recovery program for myalgic encephalomyelitis (ME), more commonly known as chronic fatigue syndrome (CFS). This is a debilitating disease that encompasses a wide range of symptoms including brain fog, headaches, post exertion malaise, and bone weary exhaustion. While many people (including doctors) often Read more…

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By Major Pain Podcast, 2 yearsAugust 17, 2022 ago