chronic

Lupus Nephritis Inspired Marimee Toya Jules to Found the Village Tree Health Support Network

In her early 20s, Marimee (who goes by Toya) was diagnosed with lupus nephritis. This is a complication found in people with systemic lupus, in which lupus autoantibodies damage the kidneys, causing impaired function or even kidney failure. At first, Toya was horrified to discover she had this disease, being Read more

Podcast: Play in new window | Download

Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More

By Major Pain Podcast, ago

Pancreatitis, Small Fiber Neuropathy, MCAS, Sjogren’s and More: Jo’s Health Journey So Far

In 2017, Jo began experiencing intense pain under her rib cage that traveled to her back, as if she was being impaled. She had complained of various pains throughout her life that doctors always brushed off, so at first she had no desire to seek professional help. But after two Read more

Podcast: Play in new window | Download

Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More

By Major Pain Podcast, ago

Living with Multiple Autoimmune Diseases

According to the National Library of Medicine, about 25 percent of patients with an autoimmune disease will develop additional autoimmune diseases. That is definitely true of this week’s podcast guest, Vicky. Her first diagnosis of autoimmune rheumatoid arthritis came during high school, and she was diagnosed with Sjogren’s syndrome a Read more

Podcast: Play in new window | Download

Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More

By Major Pain Podcast, ago

Micah’s Breakthrough Adult-Onset Epilepsy Improved Dramatically With a Responsive Neurostimulation System (RNS)

As a child, Micah would experience episodes where he would space out or become manic in class, leading his teachers to assume he had a mood disorder. He would have night terrors where his consciousness would expand beyond his body, believing he was connected to something otherworldly. He chalked it Read more

Podcast: Play in new window | Download

Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More

By Major Pain Podcast, ago

Author Alexis Kline Discusses Her Chronic Illness and How It Informed Her Latest Book

As a child, Alexis Kline hoped to one day be a professional soccer player. That all changed at 12 years old during soccer tryouts when Alexis started feeling so weak and sore that she needed to visit the doctor. Her soccer dreams were dashed when she was diagnosed with dysautonomia, Read more

Podcast: Play in new window | Download

Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More

By Major Pain Podcast, ago

Crohn’s Disease and Deep Vein Thrombosis Inspired Douglas To Become a Chinese Medicine Practitioner and Sex Therapist

Throughout his life, Douglas had been plagued by random episodes of fever, but they usually passed on their own and he was able to mostly ignore them. That all changed in his late 20s, when a particularly horrible fever took him to the emergency room. Doctors discovered an infection from Read more

Podcast: Play in new window | Download

Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More

By Major Pain Podcast, ago

Bekah’s Chronic Illness Was Misdiagnosed As Anxiety for Years

Bekah’s mysterious illness kicked into full gear when they were 14 years old. While cooking food one day they suddenly became extremely hot, fell to the floor and realized they were too weak to get back up. They were overcome by strange neurological sensations, feeling like their arm didn’t belong Read more

Podcast: Play in new window | Download

Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More

By Major Pain Podcast, ago

Country Music Rising Star Annie Vander on Her Battle With CRPS

Annie Vander is a country music up-and-comer, who’s latest single ‘Falling into Nashville’ has been featured on the Music Row Country Breakout Chart. Just a few years ago Annie had no idea that her lifelong musical dreams were about to come true. She had built a career working with animals, Read more

Podcast: Play in new window | Download

Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More

By Major Pain Podcast, ago

Recovering from Multiple Chemical Sensitivities Through Neural Rewiring

While working as a hairstylist, Merideth was repeatedly exposed to chemicals that released formaldehyde. Eventually her health collapsed, and she found herself unable to continue working. Doctors recommended avoiding future exposure, but this proved insufficient as Meredith’s issues with chemical sensitivity began to expand exponentially. She became chronically ill, housebound Read more

Podcast: Play in new window | Download

Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More

By Major Pain Podcast, ago

Doctors Fractured Her Neck During Childbirth, Then Gaslit Her for Years

In 1998 Bella was severely injured during childbirth. Her doctor accidentally stepped on the pedal to raise the table she was strapped to during a C-section, causing her feet to raise and neck to lower. She immediately complained of extreme neck pain, but was sent home in a disassociated state Read more

Podcast: Play in new window | Download

Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More

By Major Pain Podcast, ago