In 2015 Karen noticed that her right arm was not swinging as normal when she walked. She was sent to a neurologist who quickly diagnosed her with Parkinson’s disease (PD), a neurodegenerative disorder that affects the body in a wide variety of ways. Symptoms can include tremors, slowed movement, muscle Read more…
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Troy is a nurse practitioner at a LGBTQ healthcare clinic in Seattle, Washington. He refers to it as gay providers taking care of the gay community, allowing a rare opportunity for himself and his colleagues to make meaningful differences in the lives of their patients. Many individuals across the spectrum Read more…
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Myotonia congenita is a genetic disorder that Amelia recently discovered she has been living with her whole life. The disease is characterized by an inability to quickly relax muscles after contraction, which can cause muscle imbalance, rapid fatigue, chronic pain, and difficulty with daily movement like climbing stairs or standing Read more…
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Courtney refers to herself as a hot potato patient, being passed from specialist to specialist in search of a diagnosis to her mystery illness, but none of these providers have been willing to keep digging until an answer is found. She used to be an avid globe trotter while working Read more…
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This week we kick off the third season of Major Pain by catching up with previous guests! First we’ll check in with Andrew, who originally appeared in December 2021 to discuss mild traumatic brain injury (MTBI). He has been slowly improving since then, feeling as if a new self is Read more…
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Andi and Jesse wrap up season 2 of Major Pain by sharing their health updates and reflecting on the past year of the show. Jesse discusses his potential diagnoses of mast cell activation syndrome and small fiber neuropathy, while Andi tells us about her vocal surgery recovery.
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Michelle is unsure when her journey with idiopathic intracranial hypertension (IIH) began. She started experiencing chronic migraines and pulsatile tinnitus in her 20s, which may have been the first sign. However, a freak accident in which a man fell from a theater balcony onto Michelle in 2017 intensified her symptoms, Read more…
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After being diagnosed with fibromyalgia, Kiera (AKA Coach Ki) did some online research to see if she would be able to continue her fitness journey. She was disheartened to find several accounts of people unable to continue training with this disease. Kiera has been passionate about fitness since she was Read more…
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In her early 20s, Marimee (who goes by Toya) was diagnosed with lupus nephritis. This is a complication found in people with systemic lupus, in which lupus autoantibodies damage the kidneys, causing impaired function or even kidney failure. At first, Toya was horrified to discover she had this disease, being Read more…
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In 2017, Jo began experiencing intense pain under her rib cage that traveled to her back, as if she was being impaled. She had complained of various pains throughout her life that doctors always brushed off, so at first she had no desire to seek professional help. But after two Read more…
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