Ali DiGiacomo On Spoonies Being Accused of Using Illness for Likes and Views

A few years ago, Ali DiGiacomo was shocked to discover her face on a Daily Mail article called ‘Addicted to being sad: Teenage girls with invisible illnesses – known as ‘Spoonies’ – post TikToks of themselves crying or in hospital to generate thousands of likes – as experts raise concerns Read more…

Kenny Returns to Major Pain With New Diagnoses and a New Outlook

Kenny Alhadeff first appeared on the Major Pain podcast 3 years ago, sharing his experiences living in recovery from drug addiction and alcoholism. This year Kenny will celebrate his 40th year of sobriety. Since first appearing on the show Kenny has experienced the most intense chronic pain of his life, Read more…

The Testing Is Not Definitive – Cassie’s Pain Journey

Cassie sums up her chronic pain situation by saying, “we know there’s something wrong but we can’t put a name to it because the testing is not definitive.” She experiences chronic joint pain, chronic fatigue, brain fog and arthritic damage with no evidence of inflammation on her imaging. Doctors have Read more…

How Juvenile Rheumatoid Arthritis Became Andrea’s Path to Empowerment

Juvenile rheumatoid arthritis refers to an onset of autoimmune arthritis at a young age, which happened to Andrea when she was just 10 years old. She had been experiencing severe TMJ, wrist and knee pain, but doctors did not realize she had juvenile RA throughout her childhood. She was finally Read more…

Living with Multiple Autoimmune Diseases

According to the National Library of Medicine, about 25 percent of patients with an autoimmune disease will develop additional autoimmune diseases. That is definitely true of this week’s podcast guest, Vicky. Her first diagnosis of autoimmune rheumatoid arthritis came during high school, and she was diagnosed with Sjogren’s syndrome a Read more…

Living with Rheumatoid Arthritis

Between sophomore and junior year of college, Cheryl’s world turned upside down as she began to feel mysteriously unwell. She started losing weight at a frightening rate, getting down to 105 pounds. Her doctors refused to believe that she was ill, going so far as to call Cheryl’s parents and Read more…

Living with Fibromyalgia and Rheumatoid Arthritis

Kelcie’s life has been frustratingly intertwined with her chronic pain journey. She was originally diagnosed with palindromic rheumatism in her late teens, which would eventually progress into rheumatoid arthritis. In her late 20s she slowly began to experience mysterious widespread pain, accompanied by exhaustion and brain fog. Being diagnosed with Read more…

Living with Adrenal Cancer, Heart Failure, Diabetes Insipidus and More

Brooke has been diagnosed with over a dozen health conditions. Her diagnostic journey began with relatively manageable diseases including asthma, type 1 diabetes, rheumatoid arthritis and Hashimoto’s disease, but took an intense turn in her late 30s when she experienced heart failure, discovered an adrenal tumor, was diagnosed with diabetes Read more…