POTS

Tayler’s EDS was Screaming for Attention, But Doctors Ignored It

Looking back through the history of her medical challenges, it becomes painfully obvious that Tayler was born with the connective tissue disease EDS (Ehlers-Danlos Syndrome). Unfortunately, the lack of quality healthcare in her youth prevented this diagnosis for many years. She struggled physically throughout childhood, often being accused of laziness Read more…

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By Major Pain Podcast, ago

Introducing Guava: A Personalized Chronic Illness Management App

Living with a chronic health condition is difficult enough, but managing health records, medications and symptom tracking can feel impossible. That’s what the folks at Guava are trying to fix. They have created a free centralized holistic health management tool that integrates with over 50,000 health organizations across the US Read more…

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By Major Pain Podcast, ago

Defying the Odds: Danielle’s Journey with Cerebral Palsy

Danielle was born a micro preemie at just 25 weeks, weighing only 1 pound 8 ounces. Diagnosed with cerebral palsy, doctors gave her a .5% chance of living a meaningful life. Alongside cerebral palsy, she also lives with POTS and scoliosis, but this has not stopped her from owning a Read more…

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By Major Pain Podcast, ago

Classical EDS, MCAS, POTS, Fibro and More: Maureen’s Complex Journey

Maureen has lived through huge health challenges, but her outlook is still one of gratitude. After the passing of her father she has lived every day like it is her last, remembering to laugh and live in the moment. This mindset has helped her navigate a slew of health challenges. Read more…

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By Major Pain Podcast, ago

Isobel’s Chronic Illness Chronicle: POTS, SFN, ME/CFS and More

Every time Isobel has a medical test done, she has her fingers crossed that something will come back abnormal. She has been living with flare-ups on and off throughout her life, starting after a severe viral infection when she was 9 years old. Her symptoms include extreme fatigue, dizziness, brain Read more…

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By Major Pain Podcast, ago

Author Alexis Kline Discusses Her Chronic Illness and How It Informed Her Latest Book

As a child, Alexis Kline hoped to one day be a professional soccer player. That all changed at 12 years old during soccer tryouts when Alexis started feeling so weak and sore that she needed to visit the doctor. Her soccer dreams were dashed when she was diagnosed with dysautonomia, Read more…

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By Major Pain Podcast, ago

Bekah’s Chronic Illness Was Misdiagnosed As Anxiety for Years

Bekah’s mysterious illness kicked into full gear when they were 14 years old. While cooking food one day they suddenly became extremely hot, fell to the floor and realized they were too weak to get back up. They were overcome by strange neurological sensations, feeling like their arm didn’t belong Read more…

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By Major Pain Podcast, ago

Adverse Reaction to the Anthrax Vaccine, an Army Veteran’s Personal Account

Sara was eager to see the world while growing up in a small town, and rushed off to join the army right after high school. She entered basic training in 1998, the same year a massive campaign rolled out to vaccinate all military service members against anthrax. As a young Read more…

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By Major Pain Podcast, ago

Finally Diagnosed: Her Genetic Condition Hid in Plain Sight for Decades

When Ashley scheduled an interview for the Major Pain podcast to discuss her chronic illness, she was prepared to talk about living with an undiagnosed disease. But to her shock, just weeks before recording her interview, a rheumatologist officially confirmed a diagnosis. Ashley found herself looking back on her life Read more…

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By Major Pain Podcast, ago

Chronic Illness Author and Advocate Ilana Jacqueline Shares Her Rare Disease Journey

As a chronically ill child, Ilana was repeatedly accused of faking her illness when seeking medical care. Doctors refused to dig deeper into why this particular child was consistently afflicted with bacterial infections and viruses that took abnormally long to heal, choosing instead to blame the parents or Ilana herself. Read more…

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By Major Pain Podcast, ago