podcast

Unpacking the Rage of 15 Years Living with Chronic Pain

MaKenzie has received a slew of chronic pain and chronic illness diagnoses over the years, including Chiari malformation, lupus, Sjogren’s disease and Hashimoto’s syndrome, but she isn’t focused on her diagnoses. She’s focused on managing the daily impact of her symptoms and the emotional toll this journey has taken. She Read more

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By Major Pain Podcast, ago

Living with Mast Cell Activation Syndrome (MCAS)

For Meresa, one of the hardest parts of living with mast cell activation syndrome (MCAS) is the daily uncertainty. She says, “It’s still such an everyday variable disease. It really sucks a lot of the time. It’s really painful. People don’t understand what it is, they don’t always understand what Read more

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By Major Pain Podcast, ago

Jesse Mercury on Starting the Major Pain Podcast and Seeking a Diagnosis for Mystery Illness

This week on the Major Pain podcast, our host Jesse is interviewed for a change! This interview is taken from a recent rheumatoid arthritis summit hosted by Andrea Dunn. She asks Jesse what inspired him to create the Major Pain podcast, inquires about his health journey and recent diagnosis of Read more

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By Major Pain Podcast, ago

Living with Collagenous Gastritis

Ezra lives with collagenous gastritis (CG), one of the rarest conditions we’ve ever covered on the Major Pain podcast. Collagenous gastritis is characterized by a buildup of collagen in the digestive tract, which causes bumps or nodules to form. The most common symptoms are abdominal pain and anemia. Ezra has Read more

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By Major Pain Podcast, ago

My Secret Life of Pain: Marie’s Journey With Pudendal Neuralgia

Marie’s road to developing pudendal neuralgia is long and complicated. Pudendal neuralgia is a chronic pain condition involving damage to the pudendal nerve, which is the main nerve that branches to the genitals. Marie now lives with constant pain that is worsened by sitting, so she is forced to either Read more

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By Major Pain Podcast, ago

Pituitary Adenoma Surgery: Andi Shares Her Experience

A pituitary adenoma is a tumor on the pituitary gland that secretes prolactin (also called a prolactinoma). For some people these tumors can be harmless and go unnoticed, but for others it can cause severe symptoms. For Andi it caused extreme hormone dysregulation, exhaustion and mental health challenges, including depression, Read more

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By Major Pain Podcast, ago

When Small Fibers Cause Big Problems; Mark’s Mysterious Case of Small Fiber Neuropathy

Mark’s disturbing health problems have been stumping doctors for years. He started having zappy pains in his hands, face and feet, temperature dysregulation, heart rate and dizziness issues. His PCP was quick to blame these symptoms on anxiety, but Mark knew there was something else at work. His gastroenterologist discovered Read more

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By Major Pain Podcast, ago

The Testing Is Not Definitive – Cassie’s Pain Journey

Cassie sums up her chronic pain situation by saying, “we know there’s something wrong but we can’t put a name to it because the testing is not definitive.” She experiences chronic joint pain, chronic fatigue, brain fog and arthritic damage with no evidence of inflammation on her imaging. Doctors have Read more

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By Major Pain Podcast, ago

Living with Dissociative Identity Disorder

Gryph has been living with dissociative identity disorder (DID) since early childhood, having developed 15 distinct identities or ‘alters’. He says, “Many of my alters have been around since the age of 2, so by the time I was diagnosed, they had 20 years of life experiences under their belts.” Read more

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By Major Pain Podcast, ago

Serena’s Duo of Severe Chronic Pain Conditions

Serena has gone to great lengths to uncover the cause of their severe chronic pain. Like many chronic illness patients, they have run into barrier after barrier when seeking care. Serena lives in Tennessee and has been denied for health insurance 5 times. They have also been denied 3 times Read more

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By Major Pain Podcast, ago