Emily has been having mysterious seizures since she was 8 or 9 years old. Her preliminary tests all came back normal, and none of the adults responsible for her care pushed any further for a diagnosis. Over time the seizures blended into her daily life, becoming a normal occurrence in Read more…
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Anyone who has passed a kidney stone will tell you of the excruciating pain, often citing it as the worst physical pain they have ever experienced. The idea of passing two stones a month indefinitely would make anyone recoil in horror, but that has been Erik’s reality since he was Read more…
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A year ago, Chelyn suddenly lost the ability to keep food down. She was constantly throwing up, losing over 20 pounds in less than 5 months. Chelyn loves food, describing it as her love language, and was utterly confused by the sudden change in her body. Seeking help initially proved Read more…
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Jesse’s mystery illness continues to go undiagnosed, and recent liver biopsy results have plunged the situation into even murkier waters. In this episode of the Major Pain podcast he sits down with his partner Andi to discuss the evolving situation. They discuss the challenges of having an undiagnosed and elusive Read more…
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Throughout Minna’s childhood she always felt different from her peers, as if everyone else had been given a manual on how to function that she had somehow missed. She struggled with sensory overload and difficulty managing social interaction, constantly needing to excuse herself from class to take breaks. As she Read more…
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When Sydni was 7 or 8 years old she started exhibiting symptoms of instability and difficulty walking. At 10 she was diagnosed with Friedreich’s ataxia (FA), a rare inherited neurodegenerative disease. Both of her parents were unknowing carriers of the disease, giving birth to two children with FA. Over time Read more…
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Zoe’s life changed dramatically at the beginning of 2021. In rapid succession she contracted Covid-19, suffered a concussion, and came down with mono. These three major stressors on her body caused a massive flare of chronic pain, functional difficulty and POTS symptoms (postural orthostatic tachycardia syndrome). At first her doctors Read more…
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At just 16 years old, Jonelle was hit by a drunk driver and suffered a broken neck. The only reason she survived is that a friend was driving behind her and rushed to her aid, holding her head in proper alignment to open the airway that had been cut off. Read more…
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Between sophomore and junior year of college, Cheryl’s world turned upside down as she began to feel mysteriously unwell. She started losing weight at a frightening rate, getting down to 105 pounds. Her doctors refused to believe that she was ill, going so far as to call Cheryl’s parents and Read more…
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Towards the end of 2020 Nic’s life took a bizarre turn. He had been a healthy father who enjoyed helping others as an EMT, but suddenly found himself in the midst of his own medical trauma. He started experiencing mysterious weakness and numbness in his legs, soon finding himself unable Read more…
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