Major Pain Podcast

Edward of "Green Plastic Whistle" discusses life with Relapse–Remitting Multiple Sclerosis

‘Green Plastic Whistle’ Makes Music with Multiple Sclerosis as Disease and Direction

Pointing to Edward’s first symptom of Relapse–Remitting MS is tricky. From anxiety in his 20s, to poor sleep and numb hands, to back pain and difficulty walking, the road to diagnosis has been rocky. When he finally received confirmation—in the form of a terrifying MRI showing countless lesions on his Read more

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By Major Pain Podcast, ago
Tim Cummings, author of The Lightening People Play, discusses his brother's history with epilepsy on the Major Pain podcast

Author Tim Cummings on How His Brother’s Epilepsy Shaped His New Novel

For Tim Cummings, growing up with a brother who lived with epilepsy often felt like there was a mysterious presence in their shared childhood room. Seizures would often affect his brother Matthew in the middle of the night, a terrifying experience for young Tim to witness. It felt like there Read more

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By Major Pain Podcast, ago
A photo of Tara Sundem, co-founder of Hushabye Nursery, who discusses neonatal abstinence syndrome (NAS) in this Major Pain podcast episode

A Novel Approach to Neonatal Abstinence Syndrome

Tara Sundem took the first steps on her journey to co-founding Hushabye Nursery while working as a neonatal nurse practitioner in neonatal intensive care units.  She would help care for babies suffering from neonatal abstinence syndrome (NAS), what used to be referred to as babies born addicted to various drugs.  Read more

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By Major Pain Podcast, ago
Cover photo for the video version of the Major Pain season 5 premiere, featuring snapshots from the video conversations. From left to right: Joey, Colby, Jesse and Angela

Season 5 Premiere! Catching Up With Previous Guests Joey, Colby and Angela

Today we are kicking off the fifth season of Major Pain! Jesse reflects on the past year before we jump into three interviews with previous guests, updating us on their health journeys. Joey tells us about a surgery to manage his hidradenitis suppurativa, plus updates on his amazing advocacy work. Read more

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From Rebellious to Transformative: Alex’s Journey with Type 1 Diabetes

Alex Burket believes that his bout with bacterial meningitis in middle school may have saved his life, because it led to the discovery of his type 1 diabetes. Although meningitis resolved in about a month, diabetes would become a constant companion. 17 years later, Alex has learned a tremendous amount Read more

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By Major Pain Podcast, ago

The College of Adaptive Arts Is Providing Continuing Education for Adults With Disabilities

DeAnna Pursai and her sister Angel describe themselves as a package deal. A foundational experience growing up in rural Indiana was when DeAnna went off to college, but Angel was left behind due to her disability. After age 22, adults with disabilities age out of national education programs in the Read more

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By Major Pain Podcast, ago
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