living with

Living with Two Invisible Conditions: Hypermobile Ehlers-Danlos (HEDS) and Autism

Brandy grew up knowing she was different. She struggled both socially and physically, having problems picking up social cues while constantly experiencing injuries and joint dislocations. When seeking help she was disbelieved, shrugged off, or accused of drug seeking behavior. Brandy tried to push through and be strong, but her Read more…

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By Major Pain Podcast, ago

Living with POTS (Postural Orthostatic Tachycardia Syndrome)

Michelle has always known that something in her body wasn’t functioning correctly. Throughout her childhood she sought help from her parents and doctors, but was told over and over that her symptoms weren’t real or serious. It wasn’t until her late 20s that Michelle was finally diagnosed with POTS, or Read more…

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By Major Pain Podcast, ago

Living with Idiopathic Ventricular Tachycardia

Jimmy and Charles met when they were 18 and 19 years old, just a few years after Charles had been diagnosed with idiopathic ventricular tachycardia (IVT). At 13 he underwent surgery to implant a pacemaker, which regulates his heart rate during IVT episodes when his heart beats chaotically. Charles was Read more…

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By Major Pain Podcast, ago

Living with Neuromyelitis Optica (NMO)

Six weeks before finishing her residency in internal medicine, Summer started experiencing bizarre neurological symptoms in her left leg. Instead of focusing on becoming a doctor she suddenly became the patient, searching for answers to her mysterious symptoms. Summer was initially misdiagnosed with multiple sclerosis, learning years later that she Read more…

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By Major Pain Podcast, ago

Living with Multiple Sclerosis: Diagnosed at 19, Thriving at 34

15 years after her multiple sclerosis diagnosis, Lauren has learned to live comfortably and happily with her disease. She now conceives of MS as a friendly neighbor, something that pops by and says hello from time to time without weighing upon her daily life. Reflecting back on her diagnosis at Read more…

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By Major Pain Podcast, ago
Yael

Living with Generalized Anxiety Disorder

Like millions of others in the US, Yael lives with generalized anxiety disorder (GAD). As is often the case, Yael experienced the effects of this disorder from an early age, her reality being that of constant worry and intruding thoughts of disaster. It was not until receiving her GAD diagnosis Read more…

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By Major Pain Podcast, ago