illness

Kenny Returns to Major Pain With New Diagnoses and a New Outlook

Kenny Alhadeff first appeared on the Major Pain podcast 3 years ago, sharing his experiences living in recovery from drug addiction and alcoholism. This year Kenny will celebrate his 40th year of sobriety. Since first appearing on the show Kenny has experienced the most intense chronic pain of his life, Read more

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By Major Pain Podcast, ago

LoveWarriorHugs on Living With Five Chronic Illnesses

Jamie is a social media chronic illness advocate under the handle @LoveWarriorHugs, but her advocacy extends beyond social media. She is an epilepsy ambassador with the National Epilepsy Foundation, and she’s also been involved in successfully lobbying to change pain management laws in Illinois. Her passion for advocacy stems from Read more

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By Major Pain Podcast, ago

Rasheera Dopson on Being Born Almost 5 Months Premature, Causing VATER and Goldenhar Syndromes

Rasheera Dopson, host of the Womanhood & Disability podcast, is an accomplished author, public speaker and advocate spreading her messages of justice, disability empowerment and awareness. She came by this work through her own experience living with two rare syndromes, both caused by her being born about 5 months premature. Read more

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By Major Pain Podcast, ago
A photo of the three podcast guests who return to update us on their stories in the season 4 premiere.

Season 4 Premiere! Catching Up With Michelle, Bek and Simon

We’re kicking off the fourth season of Major Pain by catching up with previous guests! Michelle and Bek both have new diagnoses that are recontextualizing their journeys, while Simon is feeling completely cured. As Major Pain enters its fourth season, now is a great time to support the show on Read more

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By Major Pain Podcast, ago

Managing Somatic Symptom Disorder Inside a Multitude of Chronic Illnesses

Colby has 11 chronic illness and mental health diagnoses. These include chronic pain (currently diagnosed as fibromyalgia), PCOS (polycystic ovarian syndrome), asthma, IBS, eczema, PTSD, depression, anxiety, bipolar, ADHD and somatic symptom disorder. That last diagnosis might be the least well-known of Colby’s illnesses. According to psychiatry.org, “somatic symptom disorder Read more

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By Major Pain Podcast, ago

Transposition of the Great Arteries: My Blood Flows Backwards

Like many babies born with transposition of the great arteries, Amelia was born blue. Her blood was not circulating to her entire body because the two main arteries leading blood away from her heart were switched, sending blood in the wrong direction. She was immediately helicoptered to a larger hospital Read more

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By Major Pain Podcast, ago

Unpacking the Rage of 15 Years Living with Chronic Pain

MaKenzie has received a slew of chronic pain and chronic illness diagnoses over the years, including Chiari malformation, lupus, Sjogren’s disease and Hashimoto’s syndrome, but she isn’t focused on her diagnoses. She’s focused on managing the daily impact of her symptoms and the emotional toll this journey has taken. She Read more

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By Major Pain Podcast, ago

Living with Mast Cell Activation Syndrome (MCAS)

For Meresa, one of the hardest parts of living with mast cell activation syndrome (MCAS) is the daily uncertainty. She says, “It’s still such an everyday variable disease. It really sucks a lot of the time. It’s really painful. People don’t understand what it is, they don’t always understand what Read more

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By Major Pain Podcast, ago

Jesse Mercury on Starting the Major Pain Podcast and Seeking a Diagnosis for Mystery Illness

This week on the Major Pain podcast, our host Jesse is interviewed for a change! This interview is taken from a recent rheumatoid arthritis summit hosted by Andrea Dunn. She asks Jesse what inspired him to create the Major Pain podcast, inquires about his health journey and recent diagnosis of Read more

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By Major Pain Podcast, ago

Living with Collagenous Gastritis

Ezra lives with collagenous gastritis (CG), one of the rarest conditions we’ve ever covered on the Major Pain podcast. Collagenous gastritis is characterized by a buildup of collagen in the digestive tract, which causes bumps or nodules to form. The most common symptoms are abdominal pain and anemia. Ezra has Read more

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By Major Pain Podcast, ago