Jesse Has a Diagnosis!

Jesse finally has a name for his mystery illness, as he was recently diagnosed with mast cell activation syndrome (MCAS). Andi joins him for a discussion on how this diagnosis came to be. They also discuss the progress on Jesse’s small fiber neuropathy examination, disability hearing and first experience having Read more…

MS Advocate Sam Salvaggio Discusses Her Health Journey and Shifting Diagnosis

At 19 years old, Sam Salvaggio had a strange day where her body suddenly felt off. She was woozy, and everything slowed down as if she were moving through molasses. Even though it was a cold day she sweat through all her clothes, then went home and slept for 20 Read more…

An Experimental Cocktail Helped Rohan Recover From Long COVID

Rohan contracted COVID-19 right at the beginning of the pandemic in March of 2020. A few weeks later he suffered a transient ischemic attack (TIA) also called a ministroke as a result of his infection. Although he recovered from the TIA, COVID was another story. His situation deteriorated into long Read more…

Christine’s Mysterious Chronic Pain: Searching for the Underlying Cause

Christine has been experiencing mysterious chronic pain since she was a teenager. It feels like her joints are grinding across each other, occasionally locking up so she cannot move. A few years ago her hip locked up in the middle of the night so she went to the emergency room. Read more…

Surviving Multiple Chronic Illnesses, Surgeries, a Coma and Being Pronounced Dead, Angela B. Brown Feels Blessed to Be Alive

Angela B. Brown has lived through a remarkable amount of health challenges. She says she has been a patient since day one, since she was born with three holes in her heart that have required multiple open-heart surgeries. Her chronic illnesses include a kidney disease called IGA nephropathy, a lung Read more…

How Rick Olderman’s Chronic Pain Journey Informed His Physical Therapy Career

Rick Olderman is a sports and orthopedic physical therapist with over 25 years experience. He is the author of Solving the Pain Puzzle: Cases from 25 Years as a Physical Therapist as well as the Fixing You® series of books to help people with chronic pain or recurring injuries. He Read more…

Living with Parkinson’s Disease

In 2015 Karen noticed that her right arm was not swinging as normal when she walked. She was sent to a neurologist who quickly diagnosed her with Parkinson’s disease (PD), a neurodegenerative disorder that affects the body in a wide variety of ways. Symptoms can include tremors, slowed movement, muscle Read more…

LGBTQ Healthcare: What Are the Unique Medical Needs of This Community?

Troy is a nurse practitioner at a LGBTQ healthcare clinic in Seattle, Washington. He refers to it as gay providers taking care of the gay community, allowing a rare opportunity for himself and his colleagues to make meaningful differences in the lives of their patients. Many individuals across the spectrum Read more…

Living with Myotonia Congenita

Myotonia congenita is a genetic disorder that Amelia recently discovered she has been living with her whole life. The disease is characterized by an inability to quickly relax muscles after contraction, which can cause muscle imbalance, rapid fatigue, chronic pain, and difficulty with daily movement like climbing stairs or standing Read more…

The Infuriating Contradictions of Undiagnosed Illness

Courtney refers to herself as a hot potato patient, being passed from specialist to specialist in search of a diagnosis to her mystery illness, but none of these providers have been willing to keep digging until an answer is found. She used to be an avid globe trotter while working Read more…