fatigue

Demystifying Functional Neurological Disorder: Sydney’s Story

Sydney Anne Bennett lives with functional neurological disorder (FND), which is a condition where the brain doesn’t communicate properly with the nervous system. Sydney’s symptoms include chronic pain, hallucinations, loss of taste, trouble sleeping, hand paralysis, seizures, ataxia, muscle spasms, fatigue, and difficulty using her legs. Consequently, after a year Read more…

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By Major Pain Podcast, ago

The Infuriating Contradictions of Undiagnosed Illness

Courtney refers to herself as a hot potato patient, being passed from specialist to specialist in search of a diagnosis to her mystery illness, but none of these providers have been willing to keep digging until an answer is found. She used to be an avid globe trotter while working Read more…

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By Major Pain Podcast, ago

Living with Idiopathic Intracranial Hypertension (IIH)

Michelle is unsure when her journey with idiopathic intracranial hypertension (IIH) began. She started experiencing chronic migraines and pulsatile tinnitus in her 20s, which may have been the first sign. However, a freak accident in which a man fell from a theater balcony onto Michelle in 2017 intensified her symptoms, Read more…

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By Major Pain Podcast, ago

Living with Hidradenitis Suppurativa

Joey Torre lives with hidradenitis suppurativa (HS), a painful, chronic skin condition that affects up to 2% of the population. The disease causes the formation of bumps, lesions, or boils in sweat gland areas, such as the armpits and groin. Joey also experiences extreme fatigue, which can sometimes accompany HS, Read more…

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By Major Pain Podcast, ago

Living with Type 1 Gaucher Disease

Adrianna was born with type 1 Gaucher Disease, a genetic condition in which an enzyme is missing from the body. This leads to a build up of fatty cells that can cause damage throughout the body. For Adrianna, this has led to intense bone pain, low platelet count, anemia, extreme Read more…

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By Major Pain Podcast, ago

Living with a Mysterious Seizure Disorder

Emily has been having mysterious seizures since she was 8 or 9 years old. Her preliminary tests all came back normal, and none of the adults responsible for her care pushed any further for a diagnosis. Over time the seizures blended into her daily life, becoming a normal occurrence in Read more…

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By Major Pain Podcast, ago

Living with a Chronic Mystery Illness

Jesse Mercury has been experiencing bizarre health symptoms on and off for most of his life. His symptoms include cognitive impairment, inability to control his arms and legs, difficulty speaking, muscle spasms, extreme fatigue and chronic pain. Throughout his life these symptoms have become increasingly severe, to the point where Read more…

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By Major Pain Podcast, ago