The Link Between Head Trauma and Central Diabetes Insipidus

In 2005 Tracey was in a car crash that completely changed her life. She immediately developed slurred speech and an ice-pick headache right through the center of her brain. At the emergency room she was diagnosed with a concussion and sent home, but things only got worse from there. She Read more…

Kristin Shares Her History with Acromegaly, A Growth Hormone Disorder

In her early 20s, Kristin’s body started exhibiting changes that she could not explain. She started gaining weight mysteriously, noticing that her hands and face were growing larger. Over the years this mystery intensified, even her tongue and internal organs were growing. Kristin sought help from many doctors, but was Read more…

FND or MS? Elly’s Battle for a Diagnosis After Child Loss

Functional neurological disorder (FND) is usually diagnosed when an individual has neurological symptoms but no clinical evidence of disease, and a history of personal trauma. The theory is that the brain converts stress or trauma into physical symptoms, and the treatment involves cognitive behavioral therapy (CBT) aimed at rewiring the Read more…

From Antichrist to Advocate: Daniel’s Journey with Schizophrenia

When Daniel was 17 years old he began to believe that he was a potential vessel for the Antichrist. Believing he was one of millions of potential vessels, he thought it was his responsibility to chose whether or not he should accept this role and allow his body to be Read more…

Kaitlyn Tells Us About Living with 14 Chronic Illnesses

Kaitlyn is a 23 year old recent college graduate who has been diagnosed with a whopping 14 chronic illnesses. They include Crohn’s disease, polycystic ovarian syndrome (PCOS), prediabetes, psoriasis, hidradenitis suppurativa (HS), dermatographism, chronic hives, dysautonomia, hypermobile Ehlers-Danlos syndrome (hEDS), postural orthostatic tachycardia syndrome (POTS), vasovagal syncope, cyclic vomiting syndrome Read more…

Jesse Has a Diagnosis!

Jesse finally has a name for his mystery illness, as he was recently diagnosed with mast cell activation syndrome (MCAS). Andi joins him for a discussion on how this diagnosis came to be. They also discuss the progress on Jesse’s small fiber neuropathy examination, disability hearing and first experience having Read more…

An Experimental Cocktail Helped Rohan Recover From Long COVID

Rohan contracted COVID-19 right at the beginning of the pandemic in March of 2020. A few weeks later he suffered a transient ischemic attack (TIA) also called a ministroke as a result of his infection. Although he recovered from the TIA, COVID was another story. His situation deteriorated into long Read more…

Christine’s Mysterious Chronic Pain: Searching for the Underlying Cause

Christine has been experiencing mysterious chronic pain since she was a teenager. It feels like her joints are grinding across each other, occasionally locking up so she cannot move. A few years ago her hip locked up in the middle of the night so she went to the emergency room. Read more…

Surviving Multiple Chronic Illnesses, Surgeries, a Coma and Being Pronounced Dead, Angela B. Brown Feels Blessed to Be Alive

Angela B. Brown has lived through a remarkable amount of health challenges. She says she has been a patient since day one, since she was born with three holes in her heart that have required multiple open-heart surgeries. Her chronic illnesses include a kidney disease called IGA nephropathy, a lung Read more…

Living With Myasthenia Gravis and Endometriosis

Dana experienced medical gaslighting for the first time when they were just 10 years old. A doctor accused them of making up their symptoms for attention, telling Dana’s mother they needed to be disciplined more. Dana promised themself they wouldn’t go back to the doctor unless they absolutely had to, Read more…