Isobel’s Chronic Illness Chronicle: POTS, SFN, ME/CFS and More

Every time Isobel has a medical test done, she has her fingers crossed that something will come back abnormal. She has been living with flare-ups on and off throughout her life, starting after a severe viral infection when she was 9 years old. Her symptoms include extreme fatigue, dizziness, brain Read more…

Chanda Hinton, Founder of the Chanda Center for Health, Tells Her Incredible Story

When Chanda Hinton was 9 years old she suffered a spinal cord injury due to an accidental discharge of a firearm. This moment would forever alter the course of her life, but looking back, Chanda isn’t sure she would change anything. Her work as a disability advocate has altered countless Read more…

The Link Between Head Trauma and Central Diabetes Insipidus

In 2005 Tracey was in a car crash that completely changed her life. She immediately developed slurred speech and an ice-pick headache right through the center of her brain. At the emergency room she was diagnosed with a concussion and sent home, but things only got worse from there. She Read more…

Kristin Shares Her History with Acromegaly, A Growth Hormone Disorder

In her early 20s, Kristin’s body started exhibiting changes that she could not explain. She started gaining weight mysteriously, noticing that her hands and face were growing larger. Over the years this mystery intensified, even her tongue and internal organs were growing. Kristin sought help from many doctors, but was Read more…

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Meet the Stimpunks, Supporting Neurodivergent and Disabled Individuals Directly

The Stimpunks Foundation exists for the direct support and mutual aid of neurodivergent and disabled people. Oftentimes that can look as simple as just giving people cash, as studies have shown that no strings attached financial aid is one of the most effective ways to prop up individuals in need. Read more…

FND or MS? Elly’s Battle for a Diagnosis After Child Loss

Functional neurological disorder (FND) is usually diagnosed when an individual has neurological symptoms but no clinical evidence of disease, and a history of personal trauma. The theory is that the brain converts stress or trauma into physical symptoms, and the treatment involves cognitive behavioral therapy (CBT) aimed at rewiring the Read more…

Judy Foreman on How Chronic Pain Impacted Her Journalism Career

Judy Foreman is a lifelong journalist who spent most of her career at the Boston Globe as a science and medical writer. She had a medical column that was syndicated in national and international outlets including the Los Angeles Times, Dallas Morning News, Baltimore Sun and others. She is the Read more…

Jessy’s Disabling Mystery Illness

Jessy has been living with a disabling mystery illness that has turned his life upside down. He experiences extreme fatigue, brain fog, tremors and intense pain. His body has become so unreliable that he requires a wheelchair to navigate the world. And yet, his doctors have no idea what is Read more…

Opening Up About Mental Health: Rachel Guyer-Mafune on Anxiety, Depression, ADHD and Bipolar Disorder

This week on the Major Pain podcast, Seattle based performer Rachel Guyer-Mafune discusses her history with mental health challenges, including anxiety, depression, ADHD and bipolar disorder. Although she was diagnosed with bipolar disorder in freshman year of college, she is only now beginning to open up about this diagnosis publicly. Read more…

Living with Adhesive Arachnoiditis

Hollie has been living with spinal adhesive arachnoiditis for about 16 years. Many people have never heard of this disease, including many of Hollie’s doctors. The arachnoid is a membrane that surrounds and protects the nerves in the spinal cord. Arachnoiditis refers to inflammation of this membrane, which can progress Read more…