chronic illness Archives

Major Pain Podcast Episodes

Managing Somatic Symptom Disorder Inside a Multitude of Chronic Illnesses

Colby has 11 chronic illness and mental health diagnoses. These include chronic pain (currently diagnosed as fibromyalgia), PCOS (polycystic ovarian syndrome), asthma, IBS, eczema, PTSD, depression, anxiety, bipolar, ADHD and somatic symptom disorder. That last diagnosis might be the least well-known of Colby’s illnesses. According to psychiatry.org, “somatic symptom disorder Read more…

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By Major Pain Podcast, 1 monthMarch 27, 2024 ago

Major Pain Podcast Episodes

The Testing Is Not Definitive – Cassie’s Pain Journey

Cassie sums up her chronic pain situation by saying, “we know there’s something wrong but we can’t put a name to it because the testing is not definitive.” She experiences chronic joint pain, chronic fatigue, brain fog and arthritic damage with no evidence of inflammation on her imaging. Doctors have Read more…

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By Major Pain Podcast, 3 monthsJanuary 17, 2024 ago

Major Pain Podcast Episodes

How Juvenile Rheumatoid Arthritis Became Andrea’s Path to Empowerment

Juvenile rheumatoid arthritis refers to an onset of autoimmune arthritis at a young age, which happened to Andrea when she was just 10 years old. She had been experiencing severe TMJ, wrist and knee pain, but doctors did not realize she had juvenile RA throughout her childhood. She was finally Read more…

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By Major Pain Podcast, 4 monthsDecember 27, 2023 ago

Major Pain Podcast Episodes

Chanda Hinton, Founder of the Chanda Center for Health, Tells Her Incredible Story

When Chanda Hinton was 9 years old she suffered a spinal cord injury due to an accidental discharge of a firearm. This moment would forever alter the course of her life, but looking back, Chanda isn’t sure she would change anything. Her work as a disability advocate has altered countless Read more…

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By Major Pain Podcast, 5 monthsDecember 6, 2023 ago

Major Pain Podcast Episodes

Meet the Stimpunks, Supporting Neurodivergent and Disabled Individuals Directly

The Stimpunks Foundation exists for the direct support and mutual aid of neurodivergent and disabled people. Oftentimes that can look as simple as just giving people cash, as studies have shown that no strings attached financial aid is one of the most effective ways to prop up individuals in need. Read more…

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By Major Pain Podcast, 6 monthsNovember 15, 2023 ago

Major Pain Podcast Episodes

Jessy’s Disabling Mystery Illness

Jessy has been living with a disabling mystery illness that has turned his life upside down. He experiences extreme fatigue, brain fog, tremors and intense pain. His body has become so unreliable that he requires a wheelchair to navigate the world. And yet, his doctors have no idea what is Read more…

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By Major Pain Podcast, 6 monthsOctober 25, 2023 ago

Major Pain Podcast Episodes

Opening Up About Mental Health: Rachel Guyer-Mafune on Anxiety, Depression, ADHD and Bipolar Disorder

This week on the Major Pain podcast, Seattle based performer Rachel Guyer-Mafune discusses her history with mental health challenges, including anxiety, depression, ADHD and bipolar disorder. Although she was diagnosed with bipolar disorder in freshman year of college, she is only now beginning to open up about this diagnosis publicly. Read more…

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By Major Pain Podcast, 6 monthsOctober 18, 2023 ago

Major Pain Podcast Episodes

Karra Eloff on Maintaining Joyful Relationships in Spite of Chronic Illness or Chronic Pain

Karra Eloff wants to help individuals living with chronic pain or chronic illness maintain joyful relationships. She is the author of The Chronic Pain Couple: How To Be a Joyful Partner & Have a Remarkable Relationship in Spite of Chronic Pain. Her book is the result of years of research, Read more…

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By Major Pain Podcast, 10 monthsJuly 5, 2023 ago

Major Pain Podcast Episodes

Living with Idiopathic Intracranial Hypertension (IIH)

Michelle is unsure when her journey with idiopathic intracranial hypertension (IIH) began. She started experiencing chronic migraines and pulsatile tinnitus in her 20s, which may have been the first sign. However, a freak accident in which a man fell from a theater balcony onto Michelle in 2017 intensified her symptoms, Read more…

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By Major Pain Podcast, 1 yearMarch 22, 2023 ago

Major Pain Podcast Episodes

Lupus Nephritis Inspired Marimee Toya Jules to Found the Village Tree Health Support Network

In her early 20s, Marimee (who goes by Toya) was diagnosed with lupus nephritis. This is a complication found in people with systemic lupus, in which lupus autoantibodies damage the kidneys, causing impaired function or even kidney failure. At first, Toya was horrified to discover she had this disease, being Read more…

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By Major Pain Podcast, 1 yearMarch 8, 2023 ago