In the lifespan of this podcast we have never heard a story quite like Alia’s. Up until she was 27, she was living a healthy, active life. She was a vegetarian since the age of 15, and an avid gym-goer who continued to hit personal bests on lifts. Using her degree in philosophy Read more
Podcast: Play in new window | Download
Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More
Bonnie is a licensed marriage and family therapist in Washington state as well as a nationally registered and board certified art therapist. As an undergrad in psychology and art, Bonnie knew she wanted to help people but was initially hesitant to take on the graduate school needed to become an Read more
Podcast: Play in new window | Download
Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More
Hannah is still trying to live her life as any other 22 year old would, dancing with friends, enjoying the outdoors, and loving the cows on her family farm. She hopes to share this positive view of life with chronic illnesses on her public Instagram page beyond.the.label_0 to help show Read more
Podcast: Play in new window | Download
Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More
Today we are kicking off the fifth season of Major Pain! Jesse reflects on the past year before we jump into three interviews with previous guests, updating us on their health journeys. Joey tells us about a surgery to manage his hidradenitis suppurativa, plus updates on his amazing advocacy work. Read more
Podcast: Play in new window | Download
Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More
Alex Burket believes that his bout with bacterial meningitis in middle school may have saved his life, because it led to the discovery of his type 1 diabetes. Although meningitis resolved in about a month, diabetes would become a constant companion. 17 years later, Alex has learned a tremendous amount Read more
Podcast: Play in new window | Download
Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More
Looking back through the history of her medical challenges, it becomes painfully obvious that Tayler was born with the connective tissue disease EDS (Ehlers-Danlos Syndrome). Unfortunately, the lack of quality healthcare in her youth prevented this diagnosis for many years. She struggled physically throughout childhood, often being accused of laziness Read more
Podcast: Play in new window | Download
Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More
Andi and Jesse are married! For their wedding registry they asked their community to donate to an Undiagnosed Disease Fund, with the goal of raising enough money to provide genetic testing for an individual in need. Full genome sequencing can be helpful for individuals with a mystery illness, either to Read more
Podcast: Play in new window | Download
Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More
Living with a chronic health condition is difficult enough, but managing health records, medications and symptom tracking can feel impossible. That’s what the folks at Guava are trying to fix. They have created a free centralized holistic health management tool that integrates with over 50,000 health organizations across the US Read more
Podcast: Play in new window | Download
Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More
Dr. Melanie Hoppers never planned to become an expert on chronic fatigue syndrome (CFS). She learned about it briefly in medical school, but her professors largely brushed off the complaints of CFS patients. It wasn’t until her own daughter got sick that Dr. Hoppers began to research CFS, becoming desperate Read more
Podcast: Play in new window | Download
Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More
For Kindra, it’s been a 17 year journey to figure out why she is chronically ill. Her symptoms started around 14 years old, and include not just widespread chronic pain, but also severe fatigue and brain fog. Although the pain is difficult, the fatigue has the most detrimental effect on Read more
Podcast: Play in new window | Download
Subscribe: Apple Podcasts | Spotify | Amazon Music | RSS | More