Living with Celiac Disease, Chronic Migraines, Covid Complications, Fibromyalgia and more

Kristin has lived with pain since she was 9 years old, a journey that has taken her through chronic migraines, celiac disease, covid complications and remaining medical mysteries. As a child she would experience tingling pain in her head, often accompanied by visual disturbances, nausea and vomiting. Shortly after these Read more…

Living with Rheumatoid Arthritis

Between sophomore and junior year of college, Cheryl’s world turned upside down as she began to feel mysteriously unwell. She started losing weight at a frightening rate, getting down to 105 pounds. Her doctors refused to believe that she was ill, going so far as to call Cheryl’s parents and Read more…

Living with Nontraumatic Spinal Cord Injury and Sjogren’s Syndrome

Towards the end of 2020 Nic’s life took a bizarre turn. He had been a healthy father who enjoyed helping others as an EMT, but suddenly found himself in the midst of his own medical trauma. He started experiencing mysterious weakness and numbness in his legs, soon finding himself unable Read more…

Living with Multiple Diagnoses and Multiple Mysteries

Stacey experiences a wide variety of complex health issues that impact her daily life. Doctors have diagnosed and labeled her with many things, including autoimmune diabetes, fibromyalgia, severe anxiety with agoraphobia, bipolar disorder and schizophrenia. Living inside such a multifaceted symptom picture has been extremely challenging, especially since doctors can’t Read more…

Living with Neuromyelitis Optica (NMO)

Six weeks before finishing her residency in internal medicine, Summer started experiencing bizarre neurological symptoms in her left leg. Instead of focusing on becoming a doctor she suddenly became the patient, searching for answers to her mysterious symptoms. Summer was initially misdiagnosed with multiple sclerosis, learning years later that she Read more…

Shawna

Living with Diffuse Scleroderma, Post Stem Cell Transplant

Shawna has been through more than most 29 year olds. She has diffuse scleroderma, also known as systemic sclerosis, a disease characterized by hardening of the skin and potentially life-threatening effects to internal organs. While this disease normally effects older individuals, Shawna started noticing symptoms at just 14 years old. Read more…

Living with Multiple Sclerosis: Diagnosed at 19, Thriving at 34

15 years after her multiple sclerosis diagnosis, Lauren has learned to live comfortably and happily with her disease. She now conceives of MS as a friendly neighbor, something that pops by and says hello from time to time without weighing upon her daily life. Reflecting back on her diagnosis at Read more…

Living with a Chronic Mystery Illness

Jesse Mercury has been experiencing bizarre health symptoms on and off for most of his life. His symptoms include cognitive impairment, inability to control his arms and legs, difficulty speaking, muscle spasms, extreme fatigue and chronic pain. Throughout his life these symptoms have become increasingly severe, to the point where Read more…