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A still from The Paper Bag Plan, a new film from Anthony Lucero starring Lance Kinsey and Cole Massie. Join the creative team for a discussion in this episode of the Major Pain podcast.

Heartfelt Indie Film ‘The Paper Bag Plan’ Features Authentic Disability Representation

In The Paper Bag Plan, the new film from writer/director Anthony Lucero, a father named Oscar (Lance Kinsey) who discovers he has cancer, decides to teach his disabled son Billy (Cole Massie) to become a grocery bagger in the hopes of landing his first job and beginning a life of Read more

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By Major Pain Podcast, ago
A photo of podcast guest Alia, who discusses her mysterious chronic illness

Doctors Ignored Alia’s Mystery Illness Until It Was Almost Too Late

In the lifespan of this podcast we have never heard a story quite like Alia’s. Up until she was 27, she was living a healthy, active life. She was a vegetarian since the age of 15, and an avid gym-goer who continued to hit personal bests on lifts. Using her degree in philosophy Read more

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By Major Pain Podcast, ago
A photo of Tara Sundem, co-founder of Hushabye Nursery, who discusses neonatal abstinence syndrome (NAS) in this Major Pain podcast episode

A Novel Approach to Neonatal Abstinence Syndrome

Tara Sundem took the first steps on her journey to co-founding Hushabye Nursery while working as a neonatal nurse practitioner in neonatal intensive care units.  She would help care for babies suffering from neonatal abstinence syndrome (NAS), what used to be referred to as babies born addicted to various drugs.  Read more

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By Major Pain Podcast, ago
A photo of podcast guest Stacey with the Rare Patient Voice logo

Stacey From Rare Patient Voice on Her Path to Advocacy

Stacey is seemingly living the dream. Working as a social media manager and patient advocate for Rare Patient Voice, she balances work with being a wife, mother, dog mom, caregiver, and pursuing her goal of a happy healthy home on the islands of Hawaii. For most people the normal struggles Read more

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By Major Pain Podcast, ago
A photo of Brenda Snow, author of 'Diagnosed,' who discusses her multiple sclerosis journey

Brenda Snow, Author of ‘Diagnosed,’ On Her MS Journey

Brenda Snow was diagnosed with relapsing multiple sclerosis (MS) in the early 1990s, during an era when treatment was minimal and the condition was poorly understood—a time often marked by a ‘diagnosis and adios’ approach. Like many facing chronic illness, her diagnostic journey was filled with medical gaslighting and doctors Read more

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By Major Pain Podcast, ago
A photo of Joan, aka Joan of Heart, who discusses GERD, Barrett's esophagus and absent esophageal contractility

Joan of Heart From Pedal Playhouse on Her Complex Medical Journey

Joan, or as she is better known on the internet Joan of Heart, is an enthusiastic content creator who is best known for her YouTube channel Pedal Playhouse. There she shares her passion for effect pedals not just by reviewing them, but demonstrating what they are capable of along with Read more

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By Major Pain Podcast, ago
Bonnie from Dream Big Wellness discusses art therapy and mental health care for chronic illness and cancer care patients.

Art Therapy and Mental Health Care for Chronic Illness Patients

Bonnie is a licensed marriage and family therapist in Washington state as well as a nationally registered and board certified art therapist.  As an undergrad in psychology and art, Bonnie knew she wanted to help people but was initially hesitant to take on the graduate school needed to become an Read more

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By Major Pain Podcast, ago
A photo of podcast guest Hannah, who discusses her history with vascular Ehlers-Danlos syndrome (VEDS)

Living with Vascular Ehlers-Danlos Syndrome (VEDS)

Hannah is still trying to live her life as any other 22 year old would, dancing with friends, enjoying the outdoors, and loving the cows on her family farm. She hopes to share this positive view of life with chronic illnesses on her public Instagram page beyond.the.label_0 to help show Read more

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By Major Pain Podcast, ago
A photo of Willemijn, who discusses visual snow syndrome

Living with Visual Snow Syndrome

Willemijn lives with a rare condition called visual snow syndrome, or VSS. She sees static in her entire field of vision, no matter if her eyes are open or closed. This constantly moving static is black and white, similar to that of an old TV. The static itself is only Read more

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By Major Pain Podcast, ago
Cover photo for the video version of the Major Pain season 5 premiere, featuring snapshots from the video conversations. From left to right: Joey, Colby, Jesse and Angela

Season 5 Premiere! Catching Up With Previous Guests Joey, Colby and Angela

Today we are kicking off the fifth season of Major Pain! Jesse reflects on the past year before we jump into three interviews with previous guests, updating us on their health journeys. Joey tells us about a surgery to manage his hidradenitis suppurativa, plus updates on his amazing advocacy work. Read more

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By Major Pain Podcast, ago