pain Archives

Major Pain Podcast Episodes

Meet the Stimpunks, Supporting Neurodivergent and Disabled Individuals Directly

The Stimpunks Foundation exists for the direct support and mutual aid of neurodivergent and disabled people. Oftentimes that can look as simple as just giving people cash, as studies have shown that no strings attached financial aid is one of the most effective ways to prop up individuals in need. Read more…

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By Major Pain Podcast, 5 monthsNovember 15, 2023 ago

Major Pain Podcast Episodes

FND or MS? Elly’s Battle for a Diagnosis After Child Loss

Functional neurological disorder (FND) is usually diagnosed when an individual has neurological symptoms but no clinical evidence of disease, and a history of personal trauma. The theory is that the brain converts stress or trauma into physical symptoms, and the treatment involves cognitive behavioral therapy (CBT) aimed at rewiring the Read more…

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By Major Pain Podcast, 6 monthsNovember 8, 2023 ago

Major Pain Podcast Episodes

Judy Foreman on How Chronic Pain Impacted Her Journalism Career

Judy Foreman is a lifelong journalist who spent most of her career at the Boston Globe as a science and medical writer. She had a medical column that was syndicated in national and international outlets including the Los Angeles Times, Dallas Morning News, Baltimore Sun and others. She is the Read more…

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By Major Pain Podcast, 6 monthsNovember 1, 2023 ago

Major Pain Podcast Episodes

Jessy’s Disabling Mystery Illness

Jessy has been living with a disabling mystery illness that has turned his life upside down. He experiences extreme fatigue, brain fog, tremors and intense pain. His body has become so unreliable that he requires a wheelchair to navigate the world. And yet, his doctors have no idea what is Read more…

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By Major Pain Podcast, 6 monthsOctober 25, 2023 ago

Major Pain Podcast Episodes

Living with Adhesive Arachnoiditis

Hollie has been living with spinal adhesive arachnoiditis for about 16 years. Many people have never heard of this disease, including many of Hollie’s doctors. The arachnoid is a membrane that surrounds and protects the nerves in the spinal cord. Arachnoiditis refers to inflammation of this membrane, which can progress Read more…

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By Major Pain Podcast, 7 monthsOctober 11, 2023 ago

Major Pain Podcast Episodes

Navigating the Healthcare System Can Feel Impossible, Patients Rising is Here to Help

Are you struggling to find your way through the American healthcare system? Managing a chronic illness or disability is hard enough, but convoluted healthcare plans, access issues and affordability can put brick walls in the way of necessary care. Many patients are unaware that organizations like Patients Rising exist with Read more…

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By Major Pain Podcast, 7 monthsOctober 4, 2023 ago

Major Pain Podcast Episodes

Treating Restless Leg Syndrome: Elaine’s Odyssey to Control RLS

Elaine’s odyssey to understand and treat restless leg syndrome (RLS) has spanned decades. Symptoms began in her 30s, pulling and jerking sensations mostly in her legs that made it difficult to relax. She had no idea how to describe what was happening, deciding it was impossible to tell a doctor Read more…

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By Major Pain Podcast, 7 monthsSeptember 27, 2023 ago

Major Pain Podcast Episodes

Kaitlyn Tells Us About Living with 14 Chronic Illnesses

Kaitlyn is a 23 year old recent college graduate who has been diagnosed with a whopping 14 chronic illnesses. They include Crohn’s disease, polycystic ovarian syndrome (PCOS), prediabetes, psoriasis, hidradenitis suppurativa (HS), dermatographism, chronic hives, dysautonomia, hypermobile Ehlers-Danlos syndrome (hEDS), postural orthostatic tachycardia syndrome (POTS), vasovagal syncope, cyclic vomiting syndrome Read more…

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By Major Pain Podcast, 8 monthsSeptember 6, 2023 ago

Major Pain Podcast Episodes

Jesse Has a Diagnosis!

Jesse finally has a name for his mystery illness, as he was recently diagnosed with mast cell activation syndrome (MCAS). Andi joins him for a discussion on how this diagnosis came to be. They also discuss the progress on Jesse’s small fiber neuropathy examination, disability hearing and first experience having Read more…

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By Major Pain Podcast, 8 monthsAugust 30, 2023 ago

Major Pain Podcast Episodes

MS Advocate Sam Salvaggio Discusses Her Health Journey and Shifting Diagnosis

At 19 years old, Sam Salvaggio had a strange day where her body suddenly felt off. She was woozy, and everything slowed down as if she were moving through molasses. Even though it was a cold day she sweat through all her clothes, then went home and slept for 20 Read more…

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By Major Pain Podcast, 8 monthsAugust 23, 2023 ago