neuromuscular

Tyler Roope on Living with Spinal Muscular Atrophy (SMA)

Tyler Roope is a 25 year old TikTok star, who blends comedy and education while advocating on behalf of the disability community. He lives with spinal muscular atrophy (SMA) type 2, which severely limits his voluntary muscle movement. Tyler is considered a strong type 2 since he is able to Read more…

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By Major Pain Podcast, ago

Living with Friedreich’s Ataxia

When Sydni was 7 or 8 years old she started exhibiting symptoms of instability and difficulty walking. At 10 she was diagnosed with Friedreich’s ataxia (FA), a rare inherited neurodegenerative disease. Both of her parents were unknowing carriers of the disease, giving birth to two children with FA. Over time Read more…

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By Major Pain Podcast, ago