Living with Multi-Generational Ehlers-Danlos Syndrome

Kenneth’s family has a multi-generational history with Ehlers-Danlos syndrome (EDS). Family members with the disease include his mother, uncle, grandmother and great grandmother. Kenneth was diagnosed at just 2 years old while being examined for a knee injury. A trauma caused massive swelling in his knee, producing a hematoma the Read more…

Complex Regional Pain Disorder: My Pain is like a Petulant Child

Pris is a 4th generation circus performer and entertainer who has worked in costume design and staged weapon play. She grew up as a very physical child, filling her days with dancing, baseball, basketball and more. She was familiar with the feeling of a normal bone break, and the subsequent Read more…

Living with Nontraumatic Spinal Cord Injury and Sjogren’s Syndrome

Towards the end of 2020 Nic’s life took a bizarre turn. He had been a healthy father who enjoyed helping others as an EMT, but suddenly found himself in the midst of his own medical trauma. He started experiencing mysterious weakness and numbness in his legs, soon finding himself unable Read more…

Living with Erb’s Palsy

On the day she was born, Favor suffered an injury that would have permanent repercussions on her life. Her brachial plexus was damaged during birth, causing a condition called Erb’s palsy. The brachial plexus is a network of nerves in the shoulder that carries sensory information from the spinal cord Read more…

Life after a Traumatic Brain Injury (TBI)

Eight years ago Christelle was hit by a texting driver while riding her bicycle. Her head went through the driver’s windshield, fracturing her skull and causing a traumatic brain injury. Three lobes of her brain were affected, resulting in a variety of symptoms including issues communicating, emotional dysregulation and difficulty Read more…