ankylosing spondylitis

Elicia and Casey, guests on the Major Pain Podcast, are pictured here, on this episode where they discuss how their shared experience of chronic pain and disability inspired their artistic collaborative, Sensory Dimensions.

Making Pain Tangible: How Sensory Dimensions Turns Chronic Pain Into Art

How do you go beyond enduring pain and turn it instead into a transformative artistic experience? Casey and Elicia are the powerhouse behind Sensory Dimensions, a creative collaborative that recontextualizes experiences of chronic pain and disability through music, movement, projection, and tactile art. Their work asks what happens when pain Read more

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By Major Pain Podcast, ago

Karra Eloff on Maintaining Joyful Relationships in Spite of Chronic Illness or Chronic Pain

Karra Eloff wants to help individuals living with chronic pain or chronic illness maintain joyful relationships. She is the author of The Chronic Pain Couple: How To Be a Joyful Partner & Have a Remarkable Relationship in Spite of Chronic Pain. Her book is the result of years of research, Read more

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By Major Pain Podcast, ago

A Diagnosis from Every Category: Ankylosing Spondylitis, Vestibular Migraines, Bipolar Disorder and More

Kevin has been on a diagnostic roller coaster over the past few years. He was working in a management position at a museum when he started having trouble walking, difficulty straightening up and intense pain in his feet. He also developed uveitis in his eyes, a painful inflammatory condition that Read more

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By Major Pain Podcast, ago

Caitlin’s Chronic Illness Puzzle: POTS, Spondylolisthesis, Hypermobility, FND and More

Many children beg their parents for a pony, but Caitlin actually made that dream a reality. She wasn’t allowed to have a pony until proving she could afford one and look after it by herself, so as a teenager she bought one in secret, finally informing her parents 10 months Read more

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By Major Pain Podcast, ago

Living with Ankylosing Spondylitis, Crohn’s Disease and Fibromyalgia

Elias has a trio of chronic pain syndromes, ankylosing spondylitis, Crohn’s disease and fibromyalgia. Ankylosing spondylitis is the least well-known of these conditions, and involves a cycle of inflammation, calcification, scarring and bone formation that can actually fuse vertebrae together over time. Crohn’s disease is a form of inflammatory bowel Read more

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By Major Pain Podcast, ago