This week we have a community focused episode with Jesse and Andi. First they share an email from listener Morgan, and discuss the ramifications of multiple misdiagnoses when searching for answers to a mystery disease. Then they dive into Jesse’s health update, including progress towards finding a diagnosis and the new challenges faced while tracking down definitive test results. They also share their fantastic experiences traveling to Tahoe, learning that traveling with a wheelchair can open up many new possibilities. They discuss visiting the Achieve Tahoe nonprofit to rent a Grit Freedom Wheelchair, an off-road chair that allowed Jesse to go for a ride in the woods, and the many other accessible sports they were introduced to on this trip. Jesse and Andi also open up about challenges they have faced in their relationship navigating the ups and downs of Jesse’s health journey, and how the transition to using a wheelchair has positively changed the way they experience the present together.
RESEARCH OPPORTUNITIES: https://rarepatientvoice.com/MajorPainPodcast/